Cherishing Elliot’s Memory Forever:  Building a Fund to Empower Dreams and Perpetuate Hope

I’m not sure why.

But I have had trouble moving forward with setting up a fund to honor my son Elliot’s memory. Peculiar, because typically, my to-do list is my go-to coping mechanism. Human doing, as opposed to human being, as they say, but I‘m learning. Still, this particular task has overwhelmed me in persistent ways since Elliot’s shocking death three years ago. Maybe the concept of a memorial fund is just too much to bear on top of everything else. Or maybe it’s because Elliot’s passions defined him so thoroughly that containing them in an administrative apparatus feels inadequate. Regardless, as Roland Barthes states in his brilliant book, Mourning Diary, “The finality of death is unavoidable.” 

Maybe I’m just stuck in denial.

But it’s a murky, dark, and anxiety-producing kind of denial. From the lingering questions about what actually happened that horrible day, to festering fantasies of his being spirited away by some secret dark-web intrigue, to a myriad of other what-ifs and inconsistencies, there’s no relief. Only an agonizing series of dead ends that fail to scumble the sharp edges of my broken heart.

Grieving this way feels excruciating and relentless.

As I travel down this exhausting and painful road, surrounded by a pandemic and a world in constant turmoil, I have come to realize that it is imperative that I recognize and cherish every shift, every exhale, every glimmer of possibility—no matter how tiny. Though they are not always easy, these baby steps are where meaning lurks, and in grief, meaning is essential for survival.

Therefore, I am taking a step.

Elliot’s father, Max, and I have decided to move ahead with creating a donor-advised fund with the Communities Foundation of Texas in memory of our sorely missed son, Elliot Everett Wright. We are still ironing out the details, but we will be launching it soon. And you will have the opportunity to participate as we amplify Elliot’s memory together.

Here are some initial musings . . .  

The Elliot Everett Wright Tsundoku Fund: Empowering curiosity, passion and purpose in memory of one wild and precious life—well-loved and well-lived, but far too short.  

We lost Elliot Everett Wright, our brilliant 26-year-old first-born son, on August 5, 2018, in a sudden and tragic single-vehicle motorcycle accident in Dallas, Texas.

A remarkable human, Elliot had more passions and interests than are possible to name, many emerging from books. And as a confirmed Japanophile, as well, he was wryly fond of the concept of tsundoku, the practice of collecting books—so many in fact, that they surround you in piles everywhere, read and unread. I believe this notion is quintessential Elliot—reflecting his insatiable curiosity on so many levels. His Uncle Doug said it best in his eulogy, “Elliot was a perspicacious boy—and the closest thing I knew to a human encyclopedia.”

In this spirit, we are creating a special fund in his memory—to fuel fervent passions that make dreams come true. Having ignited so many lives during his truncated time on earth, Elliot’s spark will never be extinguished. Through his “tsundoku fund,” he will continue to brighten the minds and hearts of fellow travelers, artists, learners, rebels, scholars, musicians, poets, and raconteurs who share his “perspicacity.”

Like piles of books, their projects are ”journeys ready to be taken,” but they require an angel gift, a timely contribution. The fund will likely consider proposals of all types—with a focus on education, literacy, music and travel. Currently, we are thinking grants may support:

  • Scholarships
  • Fees for classes, workshops or online certifications  similar to the one he pursued in Red Hat Linux programming that changed his professional life)
  • Travel to explore or study
  • Instructor-led lessons/training for any high-stakes pursuit, such as riding a motorcycle or flying an airplane
  • Open-source coding, music or literacy initiatives

Tax-deductible contributions will be welcome when the fund’s link goes live.

So, stay tuned . . . Please share your thoughts and ideas with me.

A View of the Summit: A Writing Retreat’s Unexpected Narrative Arc

It felt like kismet when I received the email.

“I’m writing because we just had a cancellation on the St. Paul writing retreat, and you’re number one on the waiting list,” it said.

And there it was — the inciting incident that launched my story.

When everything seemed to fall into place, I felt confident the August retreat would provide a welcome creative escape and a nurturing 60th birthday present to myself. After all, August is the most wicked of months. Since the death of my oldest son, Elliot, in August 2018, conflated with too many profound losses in recent years, I have written to grieve — and frankly, survive. Finding my writing roadmap was my objective for the week, but the universe had its own unique take in that.

Little did I know, this retreat would become the subject of my writing, as opposed to the enabler of it.

Perhaps that’s why the impact has been so seismic. Kind of like Dorothy in The Wizard of Oz, I was searching for something outside myself to help heal my shattered soul. But what I encountered was the startling real-time reality that said process is — and always will be — an inside job.

I realize now this transformative experience was less about my creative path and more about my grief journey.

Though I thought I had packed light, I arrived with some extra baggage. Turns out grief behaves like a clingy companion who never checks out and never leaves — brazenly taking up residence in every cell of your body. Sometimes, I feel like my son Ian’s lizard, Carlton, except I can’t ever seem to shed my stiffening outer layer of skin.

So, for this grief-ladened former extrovert, jumping into a bubbling broth of bright, witty women — who also happen to be ten perfect strangers — was a little like diving headfirst into 35-degree plunge pool. Game on, sister. Like riding a bicycle, yes, but also a stark reminder that I have become a completely different person since Elliot’s death.

“Be gentle with yourself,” said one of the angel voices in my head.

On paper (or online), this immersive writing experience felt almost magical — the “Oz” of writing retreats but still layered with complexities. At the top of the list was the pandemic. It was my first time on a plane in a year and a half. In her follow-up email, retreat leader Jess Lourey assured me they were following “Minnesota COVID guidelines,” and they had cut the attendance in half. It still felt strange. Then, there was the Twin Cities location — packed with backstory for me, now viewed through the traumatic lens of George Floyd’s tragic murder last year.

On the plus side, there were memories from my salad days as an intern in the mid-1980s at The Guthrie Theatre, including wacky adventures with my college pal Peter, who was a Minnesota native. It was a time when anything felt possible. From Mary Tyler Moore to Prince to friends in the area, it seemed like the ideal destination after an extended period of debilitating grief and isolation. There would be yoga, meditation, healthy food, and a community of brilliant women, peppered with sassy literary insights from Jess, accomplished writer and professor.

As I approached the shadowy Summit Avenue manse on that first day, it dripped with 19th century charm in a Grey Gardens sort of way. Its cluttered elegance felt both inviting and unsettling. Shabbier than chic, the front porch was festooned with overgrown hanging plants and clusters of peeling lounge chairs with faded cushions. Dangling strands of greenery enveloped the tattered lanai like a lacy antique tablecloth draped over my long-deceased grandmother’s dining table.

My room was on the so-called “garden level,” termed euphemistically since the vine-wrapped transom windows, barely peeking above ground level, had probably not been cracked open since 1925. I tried to appreciate the quaint appeal, but I was struggling to sleep and breathe in the dank basement room with no air conditioning. And the fans they dug out of the closet did not help the sullied, stagnate air situation at all. It felt like a blast furnace at night.  

This was not my beautiful retreat, nor the 60th birthday experience I had envisioned. Once again, my yin clobbered my yang. The blessing and the curse;  bitter and sweet; excruciating and transcendent. It was overwhelming, really—a mosaic of epiphanies, fears, tears, laughs, gold nuggets, connections, wine, hugs, more tears,  sleepless nights, perspiration, Kleenex, mucus, chocolate, thick coffee, and abundant charcuterie.

Let’s just say it was complicated.

In particular, a worsening runny nose and cough came into full bloom on day two, and an IM to my doctor to check symptoms resulted in what I feared.

“Yes, Elaine, get a  COVID test,” she instructed. “The variant is causing milder breakthrough symptoms in vaccinated people.”

I shared my concern with Cindy, one of the hosts, and she said, “Oh dear. I’m sorry. We don’t have liability insurance to drive you to get a test.”  

I was stunned, but fortunately, angels on earth do exist because Lea, my retreat compatriot, came my rescue. Survival mode is my natural state, so I did what was hardest for me—asked for help. My therapist would say I was over-functioning, but I needed a ride. Lea had driven from Rochester, Minnesota, my pal Peter’s hometown, so she had a car. We had hit it off on day one. I knew Lyft would not drive me to get a test, and I had no transportation.

Though I was vaccinated, I could not rest until I knew my status. How could I run the risk of infecting the retreat bubble with COVID? What would happen then? No one was masking. After all, I had come for Texas, where hospitalizations were rising. I was feeling my anxiety ramp up. Handling this was distracting and stressful, to say the least. Shattered any Zen vibe that might have been brewing. And a COVID test was definitely in sync with a restorative retreat I imagined. 

After extensive online searching with my dear Lea’s help, we found the only test available that day at a sketchy “emergency” COVID lab located in the industrial outskirts of St. Paul. It required prepayment, but I was game. We hit the road like Lucy and Ethel trying to find William Holden at 21. It was as hysterical as it was annoying. There were even some madcap antics when we could not find the poorly marked entrance behind the thick, uncut grass. We thought it was scam.

Lord, we giggled and gasped our way across the Twin Cities, laughing through our tears. And miraculously, for a couple of hours that afternoon, I felt my crusty lizard-grief skin dissolve into a puddle of silliness. For just a brief moment or two, I felt like me again — me with a cold, that is. Thank you, Lea for that unexpected glimpse of joy and your extreme generosity.

Not surprisingly, more intrigue ensued as I had to follow up when the results did not appear as promised within an hour. Apparently, the technician had stepped out for some wild rice soup, I guess, but they eventually found him, and it was negative. Thank God.

Back to our program in progress, Jess, our charming, brilliant and earthy retreat guru, was deep into her spectacular curriculum. It’s all a little foggy to tell you the truth, but I can tell from my notes that she offered a keen understanding of how to construct a narrative. It was all about finding clarity and giving yourself permission to sink into the power and value of your story. She was a font of practical knowledge, too — all the brass tacks and tricks to get ’er done. Meanwhile, Cindy, her perky and polished partner in crime, orchestrated our delicious moveable feasts and morning yogas with unflappable panache. Exhaling felt good — especially when the congestion cleared a bit.

But the heart connections among the women were the highlight. It’s ironic that words elude me to adequately describe the experience of a writing retreat, of being in the presence of these amazing soul sisters, but that’s probably because it feels as ephemeral as the tiny fuchsia morning glories that bloomed for only an hour or so in the sprawling backyard each day. Finding authentic community is rare — particularly in the brave new pandemic world. There was a little Oz in the mix.

So, in spite of the mayhem, I believe this week was a long overdue investment in my muse and myself. It taught me to go on cherishing the beauty in the tiniest glimmers of grace. I am grateful for the memories, motivation, momentum, and minor mending of my fractured heart. And I could not wait to get home to my air-conditioned bedroom.

Because there’s no place like home.

It’s All Grief to Me: 5 Things Grievers Would Like to Hear

Thankfully, I have found several groups for bereaved parents on Facebook. Yes, they are the yin to Facebook’s otherwise troubling yang, but the shattered hearts convened in them are full and present. They weave together the bitter and sweet, the dark and the light, the loss and the love. Thinking of Leonard Cohen’s wisdom, “There’s a crack in everything. That’s how the light gets in.”

These sacred conclaves provide safety and warmth in the midst of grief’s pervasive miasma. They have exacting parameters, like “Loss of an Adult Children,” “Sudden Death,” “Parents Who Have Lost Sons,” and “Refuge in Grief.” And their openheartedness is as transformative as it is devastating. In fact, their kind words often keep me functioning on my worst days. It’s a level of knowing no one else possesses. 

Part of the pain of living with the death of a child is the ancillary awkwardness of engaging with other people in the world every day. The tragic reality of losing a child is a stark identity that seeps into every interaction, whether expressed on the outside or fiercely contained on the inside. Every conversation is a reminder, ladened with trenchant decisions about what to say, how to say it or whether to say it at all. It’s like having two or three people arguing inside your head all the time.

A recent question on one of these precious groups sparked a deeper dive into my own lexicon of grief. A member posted, “What do people say that helps you most?” This intrigued me, as I thought taking inventory of what resonates with this group of irreparable hearts might help other humans who stumble around those struggling with grief or who avoid them completely.

Let’s start at the top. This list is full of contractions, but then, so is grief.

  1. Nothing

Say nothing. This might seem counterintuitive, but it makes perfect sense. This is about just being present, just saying you are present. That’s all. In pre-COVID times, it meant hugging, sitting next to you on the couch or just holding a hand silently. I think this is the ultimate comfort in grief—like sitting shiva in Judaism. You don’t have to talk or offer beverages or speak. Just be. Allow the pain without fixing, evangelizing, entertaining, cajoling or minimizing. Human presence is a divine gift and a relief. In writing, it translates as “I have no words, but I am here.” Or “my heart is with you.” The grace is in the spaces between.

2. “I am here.”

“I am here” gives a voice to the above. This response ranked high. As grief guru David Kessler says, “Grief must be witnessed to be healed.” Strange but true. “I am here.” “I see you.” “I hear you.” “I am here for you.” “I am here anytime, day or night.” “I am here when you need to talk or when you don’t want to talk.” This is the power of presence.

3. Say their names, share their memories

Casual acquaintances frequently shy away from saying my son Elliot’s name, and they sometimes visibly cringe if I do. But I love it when someone asks, “Will you share a favorite memory of Elliot?” Or says, “Let’s talk about Elliot. Remember when he  . . .” or “I want to tell you a story you might not about Elliot.” Saying their names keeps their memories alive—so personally and poignantly. The invitation to share a memory somehow propels his memory into the present moment instantly. He doesn’t feel so gone. For a brief  moment, it’s more sweet than bitter.

4. “I will never comprehend your pain.”

Every grief is different—as unique as every loss. Though we may share commonalities in our stories, the essential pain is our own. Offering acknowledgement of this can be very comforting and healing—like a specially compounded ointment. “I can’t possibly begin to know your pain or how you go on.” “I have no idea what you are going through, but I am here for you in any way I can be.” I suppose this is a riff on “I am here,” adding the shared dimension of incredulity.

5. Speak from your heart

You don’t have to fix. Just feel. “My heart breaks.” “My heart hurts.” “My heart bleeds.”  “My heart is next to yours.” “My heart is with you.” There is something visceral and intimate about these statements. It’s both physical and emotional. Elliot will always live in my heart and in the hearts of all those who adored him—the agony and the joy in one place.

I am in no way suggesting we should script such things. Far from it, but I would like to see us cultivate a greater ease and openness with loss—allowing space for its enormity to expand. It is scary, but we are here on the earth to be in relationship—to be better at being human in the hard times.

But as a grief-averse culture, we simply don’t have the everyday language around life’s most painful events. I find this ironic since the pandemic has made the immediacy of grief as much a part of life as the joy of birth. And yet, the social dialogue is still tense, brittle and detached. So much so, we continue to default to the perfunctory, “I’m so sorry for your loss.” How did this happen? I’m sorry . . . for your loss? It does not even make sense. You don’t need to apologize for my loss. And “sorry” is a flimsy word, like trying to put out a fire with a Dixie cup. Just feels inadequate.

In the ebb and flow of the pandemic, we are in a both/and world—forced to learn a new way to be as we live. There is no new normal. Perhaps, a new tolerable—with the occasional glimmer of joy. I want to learn to carry the loss and the love together, the grief and the grace. Grief will always be a part of who I am down to the marrow—not just something that happened to me I have to get over. The tap dance of OK-ness is utterly exhausting. But the dark pit of despair is no place to exist, either.

So, I’m not going to list the ridiculous clichés. You’ve heard them. You may even say them. (No judgement.) But here are a few other great words worth sharing from the collection:

This totally sucks, but I’ve got you.”

“I want to know everything about Elliot—when you are ready.”

“You will get to a place where the sting of the pain softens a bit. Until then, I will be here for you every step of the way.”

“I love you. You are loved . . . always.”

“It’s OK to not be OK for as long as it takes. Allow yourself to feel and grieve at your own pace.”

“If you want to share your pain, I will catch what I can. I am here to sit or listen, and hold a space for you.”

“I can’t take your pain away, but I do have a shoulder to cry on and ears to listen.”

Megan Devine, another one of my grief gurus says, “Acknowledgement makes things better even when they cannot be made right. It’s a radical act to allow others pain and sit beside them with it.” In the end, grief is love.

Over the Rainbow: On the Edge of August

Maybe it’s the accumulation of almost sixty years of living in this body, but I am feeling the weight of my existence. No, my survival. I feel like I have been in survival mode—consciously or unconsciously for nearly half my life. That takes my breath away. Yet the past three years have eclipsed everything that came before. The loss of my son Elliot three years ago on August 5, 2018, at age 26 is the heaviest of all.

With August just days away, I have been drilling down into my search for a sense of renewed purpose in my life. With my son Ian in the interactive thick of his gaming master’s program at SMU, I have been peeling back the layers of my personal onion lately—asking myself all those daunting and stupefying questions:  How do I find meaning?  Why am I  here? What’s next?  How did I get here? Where do I belong? What should I do? All the usual cocktail party banter. Oh, how festive a good cocktail party used to be . . .

Writing helps. But it can be both an astringent and a salve—like pouring hydrogen peroxide on a wound to make it sizzle with pain, then soothing it with a healing ointment. This is an inescapable reality of living in the ubiquity of grief—a curse and a blessing, pain and gratitude, light and dark—all about finding a way to carry both with grace and aplomb. Ah, but there’s the rub. I seem to be fresh out of aplomb, but that might not be such a terrible thing. Stripping off the hardened layers of figurative varnish, liberally applied over the years to make everything look good on the outside, is probably healthy. Authenticity is definitely less work but more vulnerable. I have found that being present, grounded and real in the moment has its advantages.

Feeling bravely. Letting go. Saying no. Intentionally noticing where I am—to calm my unconsciously triggered nervous system. That’s the work. I can try to override an event intellectually, but my body keeps the score and always wins (referencing a seminal book on the subject by Bessel van der Kolk.) That’s pretty much how I roll now. Simple? Not always.

Process. Trust the  process. But trust the process?

As another August looms, it’s getting harder to breathe, especially since I am about to mark six decades on the planet on the 15th.  I also am remembering my late Aunt Virginia, who would have been 98 on August 6, and my mother, who died on August 22, 2012. Her birthday is August 27, and she would have been 86-ish. I’m a little vague on this, because my mom fudged her date of birth for so many years that she could never authoritatively confirm it. Regardless, August is heavy, and nine years later, my heart breaks for my mother—charming and magnanimous in public, but resentful and insecure in private. And tragically, her devastating stroke snatched her flamboyant life away far too soon—after leaving her paralyzed, brain-damaged and bedridden for nearly two years.

Thinking of Elliot and my mother on the edge of August, I am wondering about the journey of souls and the nature of life. Are Elliot, Mother, Father, Aunt Virginia, Cousin Scott, and my beloved mentor Ann Abbe together in some parallel cosmic dimension watching me try to function? Sometimes, I think so, but I’m not sure. When I interacted with my mother, aphasic after her stroke, she could say only “bah-bah-bah” with no discernible meaning attached. Yes, she was awake and present, but she was not there in a way I recognized. I suppose the mask of her larger-than-life self had dissolved. Being with her toward the end, I learned that souls have nothing to do with speech, thoughts or cognitive function. Her body was a mere vessel, still containing her spirit, but the violent rewiring of her brain’s circuits caused by the vicious stroke had amplified the serenity of her core essence somehow. It’s a strange thing to say, I know, but she seemed blissful, even giddy with childlike innocence. I was grateful for that part and wondered: Was this a glimpse of eternity?

When I was a little girl with my eyes open wide in the middle of the night under the covers, I tried desperately to visualize what heaven would be like. Would God be there? Would we frolic with angels amongst the clouds eating chocolate cake and picking flowers?  Would the streets be paved with gold and diamonds? What exactly was heaven, anyway?

I am still wondering about souls.

While the human being consists of physical matter, the soul is quite literally a piece of God, the Divine. The teachings of the Quran tell us the soul of each individual person is located in the eighth chakra at the top of the head, above the crown chakra. The power is not visible to human eyes, but it’s like the flow of electric current. And New Agers conjecture, “Your soul is your conscience, energy with no form or location that is part of the whole universe. The meaning of life is to evolve your conscience to higher consciousness—the source of all existence.”

Hard to pin down. Even harder to find.

Since Elliot died, I have never reached a point of feeling better— just different, and sometimes surprisingly so. His absence is always present. It never goes away, but maybe I’m learning to accept it—little by little, moment by moment. Not how it could have happened, but the reality that it did. I cherish the moments of forgiveness—for Elliot and for myself.  And then, a wave of grief hijacks me again. Alas, sustainable peace is just beyond my grasp right now, like the elusiveness of a distant rainbow I saw engulfing the morning sky yesterday. For a brief instant, I thought it might be Elliot—gorgeous in its subtle palette but ephemeral in its existence.

Then, I noticed something I never had—the bitter sweetness of a rainbow. Yes, there is beauty in its vivid hues, but it’s contained in a grand arch of sorrow enveloping the sky, the earth in mourning for my Elliot. I stopped in my tracks and wondered if I were the only one transfixed in this moment of poignant beauty. For so many, the rainbow is the ultimate symbol of hope and happiness, the stunning surprise belying the sadness of its form. But this is the way I meet every day and every moment of my life—such an apt metaphor for living with the untimely loss of my flesh and blood, my baby Elliot. The only solace it that he will always be in my heart—and alive in the hearts of so many who adored him.

.

Remembering Aunt Virginia and Terms of Debridement

My fearless Aunt Virginia Thompson died at age 96 on this day in June 2020 from a withering body and what I suspect were lingering complications of undiagnosed COVID she contracted in December 2019 before testing was available. I learned much from our time together in her final years on this earth, including the intensity of her faith and the ferocity of her resolve.

            In May/June of 2018, I accompanied Virginia on her weekly visits to the  Presbyterian Hospital Dallas Wound Clinic. She was treating a stubbornly angry wound she had suffered from somehow hitting the outside of her right ankle on the inside of her wheelchair wheel. It refused to heal. The folks at Presbyterian Village North, her assisted living home, had run out of options. 

            At that time, little did I know that in a matter of weeks, August 5, 2018, my mercurial first-born son, Elliot Everett Wright, would soar off his motorcycle, over the inadequate barrier on the elevated LBJ TEXpress entrance ramp and into the arms of the angels. Little did I know that this extraordinary human would take his last shallow breath on an otherwise-normal Sunday, at the very same hospital and place where he took his first breath on a Sunday, just 26 years prior. The strange confluence of these significant events still takes my breath away.

            Grief is an obtuse companion—how it ebbs and flows but also is always present. Some days, it takes effort to breathe, and others, I am able to skim along on the surface of things. But I have been thinking about the weeks leading up to the day Elliot died, after which nothing has been the same—the encounters that were, perhaps, preparing me through some strange cosmic stratagem to carry the unbearable one day. On these biweekly visits with Virginia to the wound clinic, I definitely learned something powerful about grief and the importance of pain.

            On our first visit to this chaotic clinic, I was struck by the sheer volume of patients, all seeking some sort of pain relief. There were not enough chairs for everyone. I stood. There were babies, teenagers, grandfathers, society matrons and athletes. Pain is the great leveler. I saw one disturbingly gaunt man slouched in his wheelchair with his bandaged ankle plopped in the lap of a young man with a green mohawk and an illegible tattoo on his exposed upper arm. He might have been his son. The man spoke with a gusto that filled the room. I think he must have been a teacher.

            “I believe in word economy,” he proclaimed. “I read that boy’s paper, and he used commas like he keeps them in a saltshaker.” I chuckled, but no one else in the room reacted.

            “Ms. Thompson!” the out-of-breath nurse shouted as she cracked the door.

            That was Virginia’s married name. More accurately, her “formerly married” name—the fragile identity she’d maintained for more than fifty years after Don left. I grabbed the handles on the wheelchair she usually propels with her own two feet, and we were off down the hall, meeting Dr. Moran at the door.

            “How are you doing?” asked the chestnut-maned doc as she ushered us in.

            “Just fine,” Virginia quipped.

            “This is not uncommon,” said Dr. Moran, “but it’s a bear to heal. It’s a problem of pressure. I’ll bet you sleep on your right side, don’t you? We must offload the pressure. That’s all there is to it.”

            “Offload.” Ah, there’s a lesson, I thought.

            “This is gonna hurt . . . a lot,” she warned as her nurse squirted the swollen, red ankle with lidocaine.

            “This is what we call debridement,” Dr. Moran explained. “We have to remind the body how to heal. We need to remove the dead skin that gets in the way. This sends the body’s healing properties and enzymes to the wound to liquefy the rancid eschar and slough. ”

            Virginia winced and closed her eyes tightly, but I could tell she wanted to show Dr. Moran she could take it, whatever she dished out. Then, I saw one glistening droplet run down her wrinkled cheek.

            “Are you OK?” I asked quietly. I have never seen her register pain, and she has endured much in her life. She nodded.

            “I know that hurt . . .  Uh, Ginny, more lidocaine here,” said Dr. Moran. “We need to rally all the resources we can to heal this bugger.”

            Virginia took a breath as the kind and efficient tech wrapped her puffy leg with focused precision. Moran gave us a list of instructions and pointed us to our next stop—radiology in the main hospital for an x-ray.

            I am grateful for these times with my venerable aunt. She shared so much about her life and so many of my family’s deeply hidden wounds. And this memory reminds me that sometimes the healing process requires a seismic jolt, or two or three—like removing the dead tissue multiple times, if necessary. We can’t let unattended wounds just scab over and pretend like everything is OK while the tissue underneath continues to fester in dank darkness. Ignoring pain does not relieve it. And it takes as long as it takes.

            Yet the loss of a child is a wound that will never heal completely. The tenacious scar tissue in my heart will always be there, but maybe, eventually, I can find a new way to live with the bittersweetness of the disfigurement. And maybe, talking (or writing) about my losses can help me get to that place—kind of like debridement of the spirit. It’s French – from débrider, to remove adhesions or to literally unbridle. Grief must be witnessed to help lift the weight of its bridle. Grief needs air to heal. 

            People may think talking about Elliot, Aunt Virginia, her son, or even my parents will upset me, but that’s exacting what I need. It triggers the pain, but the tears are the tonic. The pain never goes away, anyway. Not ever. But pain does play a role— signaling that something is horribly wrong, rallying the body’s resources—calling in the Navy Seals of the heart. Though the body possesses miraculous organic self-healing capabilities, sometimes the process hits a snag. It stymies, and it needs a little help to progress.

            With grief, we must do just that—debride it, as many times as required. Don’t cover it up with a bandage or pretend you are OK. We are not OK, because the pain of our grief is our barometer of love. That never dies. As complicated as our relationships might have been in life, we never stop loving—particularly those lives we brought into this world. We must revisit the pain that makes us physically wince to move through it. It’s a necessary cringe—with the caveat: Don’t build a condo there.

            We don’t always know why healing pauses, but we do know why pain exists—to tell us something is terribly wrong. Pain is a potent teacher. But senescence can happen to wounds. Senescent comes from the Latin senēscere, “to grow old.” In medicine or biology, it refers to cells that are still metabolically alive— but are no longer capable of dividing. Dormant.  Merely existing, not thriving. That’s why they need attention. Or else the virulence of unattended wounds will manifest somewhere else.

            Therefore, we must tell and retell our stories—that is our task as humans. That is why we are here on the planet. Finding situations and people who will listen and support us unconditionally is essential—people who give us the space to remember our losses and foreshadow what they mean for our futures. These people are rare and cherished. Without their divine grace, we will never completely emerge from this suffocating miasma (one of Elliot’s favorite words). In fact, a friend/mentor in my grief support community says that to endure grief, we need two things: faith and community. Together, they help us expand our worlds beyond the loss and give our festering wounds the room to debride.

            Having lost Aunt Virginia, Elliot, and almost all of my family members over the past decade, my experience of grief is constantly conflating, deepening, expanding and shifting—but it is always there. Still, grief is what makes us all excruciatingly human. Let’s fiercely embrace the pain—and each other.

            Godspeed, Aunt Virginia.

Meditations on Grief: Telltale Tears

This has been a week of tears–all varieties and chemical compounds. In a sacred time with Spiritual Director Fran Shelton, I remembered this post from two years ago–almost to the day. Seems apropos.

Elaine Gantz Wright

Tears of grief. Tears of joy. Chemically, they are identical. And yet, there are essentially three different types of tears — basal, reflex and psychic. Basal tears lubricate, protect and hydrate the cornea. The reflex variety responds to dust, irritants and allergens. And psychic tears are triggered by our strongest emotions, designed to help us release profound sorrow, as well as overwhelming joy. I think this mysterious dual chemistry of emotional tears is a metaphor for the journey of grief.

Just as I was sitting down to write a journal entry, Linda, one of my oldest and dearest friends (in length of time, not chronology), texted me a fascinating article about tears in the Smithsonian Magazine — and a wish for me more tears of joy today. Turns out, they are the exact same thing. Since I embrace synchronicity, I clicked.

The microscopic images of all three types of tears…

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Rabbit Rabbit

I saw another rabbit blur
across my path today.
“Say rabbit, rabbit”
on the first day of the month—
for luck

For today,
tomorrow and
yesterday, still
braided in
conflating ache.

I saw a rabbit.
in a lush garden—
on a blustery day
of grace, all about grief
stricken souls
longing to fill chasms
of anxious loss.

Pain and peace together,
as one, contained
in this quiet space—
sacred, witnessed
healing.

But where are you going?
Where are you now?
Is that you . . . a sign?
So urgent and quick.
Darting—
across the graveled grass
playground, where
your brother once ran.

I follow but cannot catch you.
I tiptoe but cannot touch you.
I reach out but cannot hold you
in this life,
“late for a very important date”
in your quixotic Wonderland.

Detached but curious,
Elusive but Spirited
Away—forever
Hiding in the shrubs.

Leaving me,
heart-heavy,
heart-sick,
heart-full.

May your mischief
with my mourning
mix
in memories,
and mysteries,
everlasting
love

The Nature of Grief: How I Learned to Pray

HELP. THANKS. WOW.

The brilliant  Anne Lamott says these are the only words you need to pray in tough times, and they are resonating with me deeply at the moment. Anne is a wordsmith of the most succinct order. Love this—especially since I have been grappling with the concepts of pray and faith for much of my life—but more so, lately.

As Anne demonstrates, prayer does not have to be complicated, but it can be tricky. I think she and I are on the same page about what it’s not—a wish list for existence or a direct line to the heavenly fulfillment department. In fact, I have intentionally discarded the practice of praying for thingsfor outcomes and events that I want or wish to prevent for myself or others.

Prayer does not work like that. At least, it never has for me. I don’t see God as a short-order cook or a divine delivery service. Wouldn’t that be nice? Order up! But if God functioned like an anthropomorphic Amazon.com, I think we’d have a very different kind of world. Grace delivered—overnight? Imagine . . .

Regardless, I’m thinking the universe’s operating system could use a reboot, as Elliot would always recommend when things got stuck in my cyberworld. Or possibly, a scalable upgrade? Doesn’t a cloud-based solution make perfect sense? Just sayin’. But I digress.

I may sound a little jaded, but I come by it honestly. I have been traveling this bumpy spiritual road for more than half a century, with my tail up over the dashboard, as my dad used to say. So instead, I now pray for alignment with divine order, that is, the radical acceptance of what is—and the strength to live with whatever happens in this world I don’t comprehend, whatever that might be.

After the death of my oldest son, Elliot, forever 26, almost three years ago in a still-unexplained motorcycle accident, I know that praying for anything specific is pretty much pointless. There is some greater agenda far above my paygrade at work. I have even tried praying in present tense: He is safe. We are whole. There are no guns. COVID is eradicated . . . the list goes on. But that’s not it, either, because the vastness of all creation is simply beyond all knowing. Period. 

I have gathered lots of empirical data on this. My conversations with God have been constant and frequent for as long as I can remember—when Elliot was riding those damn motorcycle(s), driving those Hot Wheel-sized Miata roadsters —and indulging in other more ambiguously risky behaviors, of which I have only sketchy knowledge. And when I was  navigating the terminal illnesses and dysfunctions of the rest of my dwindling family.

I think the playwright analogy feels most apropos. Could Hamlet ever ask Shakespeare for a different outcome? “Dear Will, uh, I’ve changed my mind. I really do believe in marriage. Can you forget about what I said about that nunnery thing?” Or could George and Martha prayerfully seek divine guidance and couple’s therapy to disentangle their codependent vitriol in “Who’s Afraid of Virginia Woolf?” Nope, not going to happen—impossible. It’s not part of the construct. The two worlds will never directly intersect.

Here’s what I do know.

All we can do is hold others (and ourselves) in our hearts and minds with compassion—wrapped in the fierce energy of love and light. I believe prayer is more about recognizing and summoning God’s universal love to fill our own souls with peace and comfort. People say prayer “works,” but I’m not sure exactly what that means. Yet I do believe in the electricity of prayer—the dancing quarks of psychic energy that ricochet in our hearts and out into the quantum field. That’s the essence of God—in all of us. I have definitely felt that phenomenon—like the waves of love engulfing me on Elliot’s 29th birthday last week. Yes, prayer is real — but not in an “I’ll have fries with that” sort of way. We have no clue what’s driving this massive creation business. None. More questions than answers. A complete mystery. We love in spite of all of it—not because of it all.

I became obsessed with this prayer notion following a profound  Faith and Grief retreat I was invited to attend two weeks ago. The leaders, Mike Shaw and Fran Shelton, brought a gentle, Christian perspective, but the experience was faith agnostic, open and affirming of all spiritual paths. There were no dogmas, no rules. The space was a loving container of inclusiveness, breath and spirit. Nourishing, bittersweet grace.  

We convened to consider the wisdom of the Clifton Strengths, a business-performance coaching tool, in the context of grief. As we identified and unpacked our unique personal strengths, we also were encouraged to expose and sit with the most uncomfortable truths of grief, such as lament, guilt and anger. Feeling our emotions fully is essential to forging the strength to live with devastating loss and find a way to carry grief and gratitude simultaneously. I am deeply grateful for this loving group—and the mystery that has enfolded me through their support.

Mystery is part of grief, death and life, too. It’s ambiguous, ephemeral and vague, but at the same time, it might be the only safe place for my heart right now, still shattered and precarious. There is a sort of cosmic mooring in the acceptance of not knowing. And yet, it’s also so unsettling.

Mystery is my only certainty.

I think that’s why my fascination with nature has intensified so—like being mesmerized by a spiderweb. It’s a potent symbol of the persistence of creation, the unending circle of life, and our microscopic place in the scheme of all things—another concept that is both comforting and overwhelming. I’m reminded of an image from a late-career Eagles song, “Waiting in the Weeds”:

The ebb and dart of a small gray spider spinning in the dark,
In spite of all the times the web is torn apart.

I love these lines  so much, and I am energized by connecting dots. The exercise grounds me somehow, giving me a place in the grand mosaic of things—a sense of value, a way to be, belong and contribute. That’s probably why I am such an avid collector of information and asker of questions—to accumulate more data and fodder for connections. After all, it’s one of my Clifton Strengths—Input. But lately, there are just too many questions with inadequate answers. No answers to so many and many, too heavy to carry.

I am weary.

I’m tired of my own curiosity. So many questions that lead to pain, confusion and despair. Oh, how I want the moment to be enough, free of all the baggage, but I am such a different person now. I can’t get used to it. I want to feel more like the “Possibilities Elaine,” again, more hopeful and content. Perhaps, as I continue to notice nature’s eternal cadence, my heart will feel more at ease. I will cherish my oneness with creation . . . and with the raw mystery of it.

The ironic addendum is that in the wake of questioning prayer at the Faith and Grief retreat, I wrote a prayer. As Hamlet would say, “There’s the rub.”

Source/God:
Help me accept the deep mystery of all creation—
that is beyond, all knowing, as I carry the bitter and
the sweet in peace that is beyond, all understanding
my thanks for the Divine gift of your love everlasting.

Help me harness my unique strengths and talents.
to see, serve and enrich others—enveloping
me as I find meaning in the darkest of hours and
glimmers of grace in the deepest of sorrows.

Help me embrace your infinite comfort and
wisdom in the profound acceptance of what is—
as I encounter each new moment in wonder
and gratitude for this “one wild and precious life.”

Wow, Elaine

What are your thoughts about grief and prayer? I would be honored to connect.

May Day Memory

It’s May Day, and I’m remembering my father, Everett Ellis Gantz, Jr. His human trek ended seven years ago today, not quite two years after the death of his charismatic artist-wife, Ann Cushing Gantz, my mother. After nearly 89 years on this earth, my father was full of wisdom but still an enigma—especially to me and to his only grandchildren, Elliot and Ian. Few truly knew the man behind the stoic, tacit Midwestern façade. The quintessential Greatest Generation engineer, my dad did long division in his head for fun. But he also clutched a lifetime of secrets in his shadows—some I have only recently exposed.

At the time of his gentle passing from dementia and heart failure in 2014, I was a struggling single mom of two precocious and complicated young men—smack dab in the middle of the caregiver “sandwich generation.” Though I tried to put my oxygen mask on first, my “sandwich-making” expertise in this stressful context was, well, uneven—always getting tangled up in the roughage. So, as I reflect on those difficult and devastating years, I recognize now that the vitriol and extreme stubbornness I often encountered on both sides of the figurative bun were clear indicators of a family unhinged. Adapting Bohn and Conrad, I’ll just say, ”The road to heartbreak is paved with good intentions.”

So, as another Mother’s Day approaches, along with the launch of another new normal, I have revisited and tweaked something I wrote at the time of my mom’s extended paralysis and aphasia after her stroke. I suspect it’s applicable to the full spectrum of grief—and hope.

Letting go.

No need to give to receive any-
more than her spirit shines,
without veneer,
without thoughts,
without words,
transcending—
her true essence, now real—
her soul apparent.
Awareness without will,
cognition, gone—
she looks at me
and now she sees?

Me letting go—
With her, content to be.
Helpless though,
in her wheeled prison.
Her body not knowing how
to bridge this chasm.

In fear, he clings,
together alone.
Refusing to accept—
or ever go home.
To let go
of control
when his seizures defy
the years
and the secrets—
he only knows why.

The anger.
The loss.
The stories,
hiding in the dark,
the stone walls—
deep in his heart.
Oh, let love live on,
forever in peace
and letting go
but never release.