Memory, the Internet, Hyperlinks, and Data Loss

Found Words on a Jump Drive by Elliot Wright[1]

Why am I writing this here? Because suddenly I am terrified of data loss.

This is likely from a combination of factors. The roots of this must be my trip to Japan; that was the place where it all came from. I went to Japan and fretted continually over the fact that I may one day forget the bulk of what I experienced there.

Eventually, these feelings evaporated, but at a steep price: because they had disappeared, I was no longer inclined to record in my diary, thus making my worry a reality. The result was a thin, tattered notebook with a Magritte[2] on the cover, which contained perhaps ten pages of handwritten material for a 5-week trip. And yet, in spite of this, when I went back to read those pages, even in such a small body of text there were morsels lodged there that I never would have remembered on my own.

I’d already read my Benjamin[3] on Proust[4], though, and so the fact that a sizeable chunk of my experience would be burned up in the act of consciousness was not news to me. Though of course, even if I had not known this, Japan would have taught me that on its own.

Though the idea is represented in Benjamin[5] and Proust, the idea of consciousness-as-incineration comes from Freud[6]. He was speaking of WWI soldiers burning away the intolerable horrors and boredom they had known in the trenches.[7] I certainly don’t know anything about the horrors of trench warfare, but I do know about feelings so acute that the conscious mind burns them upon entry. This numbing usually feels like an emergency break, a kind of last-resort red button encased in glass with a little hammer next to it. But the operation can be applied to less acute or concrete situations, as well.

One such instance was Japan. The feeling being burned away: alienation.

In America, the sense of alienation is real and acute, but it never reaches that critical mass, that critical density that enables it to act as fuel. Instead, it is like moisture from rain on the logs. The logs will still burn, but dampened.

In Japan, however, the logs are damp with kerosene, not water. The sense of alienation is so hulking that it fails to fit through the door of your sensorium. It is too big. You cannot process it, so you don’t even bother. And so you stop processing. Your self disappears. Where you fit into the big picture does not matter because you don’t fit in anywhere, and there’s no illusion like there is here.

 I got into a relationship. I started waking up earlier. I thought, maybe a real job wouldn’t be so bad. And suddenly it seemed like I was merging with the salmon stream of American society. Nonsense, of course — it was a honeymoon. I am still at my core (despite a long diversion where I believed I had no core) a lone data scrounger. Maybe I am a multicore data scrounger. That’s who I am.

In Japan, this Fata Morgana[8] never appears. You know there’s no chance, so you can embrace your outsider-dom. But I’ve gotten wildly distracted. Another thing that fuels my fear of data loss — my disorganized-ness. Files, thoughts, texts spread across Google Docs, home directories, virtual machines, shell accounts and scraps of paper. Well, not too distracted, I guess.

The point is, we lose life in its happening, and we are often left holding its threads like unearthed artifacts from a long-lost Chinese dynasty.

The other point is, the mind prunes experiences for all sorts of reasons, and as a result, the ones that make it across the experience-memory barrier are special by default, even if their selection was fairly arbitrary. In this way, the experiences that do make it through to become memories are elevated above experience itself. I know this well, and often I look forward to the memory of the experience even before the experience in question has ceased impressing itself upon my sensorium. How many times have I written these same paragraphs in different ways? Is this my version of Joe Gould’s family history? Endlessly rewritten and revised, the one hazarded component of a vaporware masterpiece?

The point actually is, LIFE IS DATA LOSS. There, there’s your mantra. (A tautology, but what other formula is so certain?)

In Japan, I learned to deal with data loss by letting it happen, realizing that it’s happening would serve the greater good of furnishing memories greater than the sum of their parts. Borges[9] and Brooker[10] dealt with it by showing how disastrous perfect memory would be. Knausgaard[11] and Proust[12] dealt with it by using the void left by data loss to create fiction and art. (Well, I suppose that’s true of all of them, really).

So Japan and Benjamin primed me to read Proust. The fact that I’ve only just drawn the connection between Japan, reading Proust soon thereafter,  and my fear of data loss is itself illustrative of the process by which experiences affect us without becoming memories — and perhaps becoming more a part of us than memories ever could. So, it’s no small wonder that after Proust, Benjamin, and Japan — oh, how could I forget Knausgaard, too, which I’d even read before Japan — that data loss was on my mind. The chain of influence unwinds madly.

When I got back, as far as Japan was concerned, I’d come to peace with it. I was happy to have forgotten myself while I was there — that was enough. I knew I could rely on the burnishing effect of Proust’s mémoire involontaire[13] from thereon out. Those memories were lodged in me, and there would always be stimuli to wriggle them loose.

Obvious ones, such as a Skype call from Ikumi[14], have achieved this in only the last few days, but so have more tangential things, like perusing Story of the Stone[15] last night while Brenda studied. The Story of the Stone is Chinese, of course, but revisiting it with bits and shards and tufts of Japan in me caused the pleasure of my first reading of Cao Xueqin[16] and the lucent quality of Japan’s mémoire involontaire to overlap.

But also like Story of the Stone and Proust (my two desert island books, for sure — I need no others, really), I was possessed with a need to turn memory into art. Like Proust, this desire was driven by nothing more than a love of literature. Nothing within me was begging to be told; I wanted to write because I like to read. (As for Cao Xueqin, he never comes out and says that he wrote because he wanted to write and nothing more, but the first and especially the second two books are little else than books about books.)

My love for books is more like Xueqin, the verse collector, than Proust, the enraptured-hand-in-a-stream type.

Sure, when I first read David Foster Wallace[17], I wanted his opinion on each and everything I ran across, just like Marcel did of the Anatole France avatar in Recherche. But largely, my love of reading is a love of hyperlinking. I love Xueqin because nothing happens except literature and words, really — especially in the second volume, my favorite so far — and because the allusive nature of letters in China means Hong Lou Meng[18] is basically a repository of hyperlinks to other works.

It’s why I love collected letters, too. A beautifully written database you can live in. It’s quite video-gamish. Reading them reminds me of the way I just kind of wanted to hang out in Midgar[19] when I played Final Fantasy VII as a kid. Or Persona 2[20] more recently. The gameplay was fairly dull, but the sounds, the graphics with their smudged hardware fingerprints all over them, well, I wanted nothing more than to climb inside. The same with the scenes and landscapes described in Hong Lou Meng.

We can trace these fibers to the place they intersect: the internet. Memory, data loss, texts as hyperlinks.

Surprisingly, it took me a very long time to zero in on the internet (again, these things fold into the self and become invisible). This was probably because its influence on me was so enormous that I swung the other way in equal measure and was equally repulsed by it. Like hates like, as like recognizes like; I lived with no personal computer and no phone for months.

Interestingly, what I perceived to be my love of literature actually brought me around again to the internet. I wanted to write because I loved to read, so I began writing. I tried to write pen and paper, and I tried to keep .txt files because of their lightweight, but the former would destroy my wrists raised on keyboards and the latter would end up getting erased because I would never save them. So, I opted for the decentralized cloud method.

There are probably better options than Google Docs for the kind of scribbling I was doing, but I wanted serious stuff and scribbly stuff (and all my documents, really) in the same place because I knew the strain spreading my docs across several platforms would pose to my organizational abilities. Of course, that ended up backfiring. All that happened was I ended up keeping too much stuff in one great big pile. Google Docs ended up being too browser intensive (it’s basically an Office virtual machine inside your browser, so that’s not terribly surprising.)

Little did I know that this sporadic web of documents was jacking the sinewy chasm of my internet mind back open. I used Gutenberg[21] to chase down quotes instead of copying them by hand. I had a general file, which was my longest surviving .txt-based foray, which moved online and was quickly displaced by a document containing a list of links (I like this option over the bookmarks bar because I can make commentary). Separate docs for fiction forays, scribble pads, poetry forays, links, unorganized quotes, a full-on journal, thoughts about the internet, everything.

And that’s when I realized that the internet had given me my love for reading: I was building a massive database. And I interact with literature as though it were one great big database of interlinked works. Everything was flat and equal; the goal was to have an optimal unbroken path of digging.

And this, I have come to: ”In Proust’s calculus, Swann’s error is not so much the failure to love Odette for herself, but rather directing at a living person the human largeness of feeling and imagination that can only find compensation in art.”[22] 


[1] Annotated with infinite love and heartbreak by his mother, Elaine Gantz Wright

[2] Time Transfixed by Rene Magritte, https://www.sartle.com/artwork/time-transfixed-rene-magritte

[3] The Philosopher Stoned: What Drugs Taught Walter Benjamin, Adam Kirsch, https://www.newyorker.com/magazine/2006/08/21/the-philosopher-stoned

[4] Remembrance of Things Past, Marcel Proust, https://campuspress.yale.edu/modernismlab/remembrance-of-things-past-a-la-recherche-du-temps-perdu/

[5] The Life and Influence of Walter Benjamin, Rhys Tranter, https://rhystranter.com/2015/04/14/the-life-and-influence-of-walter-benjamin/

[6] The Pre-conscious, Conscious, and Unconscious Minds, Kendra Cherry, https://www.verywellmind.com/the-conscious-and-unconscious-mind-2795946

[7] A New Kind of Dream: Freud, Trauma and WWI: A Look at War and Artistic Creation through the Theories of Cathy Caruth and Sigmund Freud,  https://www.worldwar1centennial.org/index.php/articles-posts/4636-a-new-kind-of-dream-freud-trauma-and-wwi.html

[8] Fata Morgana: The Strange Mirages at Sea, https://www.farmersalmanac.com/fata-morgana-mirage-28630

[9] Borges and Memory: Encounters with the Human Brain, Rodrigo Quian Quiroga,  https://mitpress.mit.edu/books/borges-and-memory

[10] Algorithmic Intimacy, Prosthetic Memory and Gamification in Black Mirror, Jin Kim, https://blogs.strose.edu/wp-content/uploads/2021/08/Kim-2021-Algorithmic-Intimacy-Prosthetic-Memory-and-Gamification-in-Black-Mirror.pdf

[11] How Writing ‘My Struggle’ Undid Knausgaard, Ruth Franklin, https://www.theatlantic.com/magazine/archive/2018/11/knausgaard-devours-himself/570847/

[12] The Proust Effect: The Senses as Doorways to Lost Memories, Cretien van Campen, https://oxford.universitypressscholarship.com/view/10.1093/acprof:oso/9780199685875.001.0001/acprof-9780199685875

[13] Proust ou la mémoire involontaire, Sebastian Dieguez, https://www.cerveauetpsycho.fr/sd/neurobiologie/proust-ou-la-memoire-involontaire-1592.php

[14] [Not sure about this one, but this seems plausible – doubting it’s ’the character with the same name.] https://en.wikipedia.org/wiki/Ikumi_Nakamura

[15] Story of the Stone, Cao Xuegin,  https://www.penguinrandomhouse.com/series/BVJ/story-of-the-stone

[16] Cao Xuegin  https://www.britannica.com/biography/Cao-Zhan

[17] The Unfinished: David Foster Wallace’s Struggle to Surpass “Infinite Jest,” D.T. Max, https://www.newyorker.com/magazine/2009/03/09/the-unfinished

[18] Hong Lou Meng https://www.amazon.com/Hong-Lou-Meng-Chamber-Classics/dp/1539851230

[19] Final Fantasy Wiki, Midgar, https://finalfantasy.fandom.com/wiki/Midgar

[20] Megami Tensei Wiki, Persona 2: Innocent Sin, https://megamitensei.fandom.com/wiki/Persona_2:_Innocent_Sin

[21] The Gutenberg Project: A Library of Over 60,000 Free Books  https://www.gutenberg.org/

[22] Swann’s Way, Marcel Proust https://campuspress.yale.edu/modernismlab/swanns-way/

Data Loss Found

I just completed the final, apocalyptic season of Search Party, a quirky and bitterly clever HBO Max series. This is a bit unusual, as the darkness of my current grief grotto tends to throw a shadow on anything even remotely comedic. But the offbeat wit of this sinisterly snarky romp appealed to the cynicism of my perpetual-pandemic malaise. I’m finding the early 2022 vibe very disturbing in visceral, new ways. Could be that I’m starting the fourth year on earth without my son Elliot or that the uncertainty of our world at the tipping point has become business as usual. Probably a sum of the parts, but all I know is that it’s heavy and exhausting. And writing, usually my salve, has been a challenge in this “blue period,” too.  I might need to spend some time outside of my own head.

In Search Party, Dory, the protagonist, becomes unflinchingly obsessed with locating a college acquaintance named Chantal, whom she learns has gone missing. But the fixation quickly seizes her—dominating her life and all her relationships, including an eccentric fellow named Elliott. Interestingly, Dory never knew Chantal well, but for some unknown reason, she takes full responsibility for finding her with self-righteous zeal. It’s her raison d’être.

Dory’s all-consuming quest immediately triggered me—reminding me of my own desperate need to find my Elliot—everything, that is, about the tangled circumstances of his death and the elusive essence of his life. Much to my dismay, most of my attempts have been as fruitless as they’ve been frustrating—trying to access the data in his disabled and now permanently deleted internet accounts. These efforts have hit dead ends across the board—even after enduring the lengthy and costly process of securing the requisite court documents. I felt like Dorothy in The Wizard of Oz, judiciously delivering the witch’s broom to the Google Oz and the Amazon Web Services (AWS) gods—with results similar to those of our scrappy Kansas gal.

And this is only one of many inconsistencies and conundrums that continue to haunt me with every inhale. What I have found is that looking for answers is a little like looking for grace. It happens in its own time—and it’s something you receive but can never ask for.

So, maybe this is not about unearthing Elliot’s digital footprints or picking up his blockchain breadcrumbs. Like the metaverse itself, this dark web of secrets seems to expand and contract exponentially with each new portal crossed and backdoor cracked. Maybe the lesson is this:  it’s time to let go of the need to know. Like Dory at the end of the series (spoiler), it’s time to just steep in the mystery for a while, breathe . . . and let acceptance bloom.

Maybe it’s time to decide to just keep going and cherish the parts of Elliot that I already know: the infinite love that exists in every molecule of my being that gave him life almost thirty years ago. These are pieces I will find only inside my heart and in the hearts of those who loved him. (I think every story must be The Wizard of Oz in one way or another.)

Until . . .

You find an errant thumb drive in an old box of items you had tucked away in storage after cleaning out your deceased son’s apartment in a fog of tears three years prior. Alas, you simply can’t resist the call of the wild USB. Gingerly, you insert it in your laptop and open up the file directory as your heart beats with expectation, and you notice that much of it looks like lines of actual code, Elliot’s native language but one you do not comprehend. There are lines and lines and lines of machine-like text, strings of strange characters and backslashes, sprinkled with words like directory and subroutine. Trying to decipher it gives you a headache—as you focus intensely on each line of cryptic verbiage, hoping to uncover some hidden gem or morsel that will reveal all. You feel a little like James Bond, but the cruel reality is that without your Elliot, your “IT Help Deck,” you are still lost.

But then, you open the very last file in the list, and it’s a readable file. It’s English, and its curiously ironic title is: “Data Loss.” (Stay tuned.)

Cherishing Elliot’s Memory Forever:  Building a Fund to Empower Dreams and Perpetuate Hope

I’m not sure why.

But I have had trouble moving forward with setting up a fund to honor my son Elliot’s memory. Peculiar, because typically, my to-do list is my go-to coping mechanism. Human doing, as opposed to human being, as they say, but I‘m learning. Still, this particular task has overwhelmed me in persistent ways since Elliot’s shocking death three years ago. Maybe the concept of a memorial fund is just too much to bear on top of everything else. Or maybe it’s because Elliot’s passions defined him so thoroughly that containing them in an administrative apparatus feels inadequate. Regardless, as Roland Barthes states in his brilliant book, Mourning Diary, “The finality of death is unavoidable.” 

Maybe I’m just stuck in denial.

But it’s a murky, dark, and anxiety-producing kind of denial. From the lingering questions about what actually happened that horrible day, to festering fantasies of his being spirited away by some secret dark-web intrigue, to a myriad of other what-ifs and inconsistencies, there’s no relief. Only an agonizing series of dead ends that fail to scumble the sharp edges of my broken heart.

Grieving this way feels excruciating and relentless.

As I travel down this exhausting and painful road, surrounded by a pandemic and a world in constant turmoil, I have come to realize that it is imperative that I recognize and cherish every shift, every exhale, every glimmer of possibility—no matter how tiny. Though they are not always easy, these baby steps are where meaning lurks, and in grief, meaning is essential for survival.

Therefore, I am taking a step.

Elliot’s father, Max, and I have decided to move ahead with creating a donor-advised fund with the Communities Foundation of Texas in memory of our sorely missed son, Elliot Everett Wright. We are still ironing out the details, but we will be launching it soon. And you will have the opportunity to participate as we amplify Elliot’s memory together.

Here are some initial musings . . .  

The Elliot Everett Wright Tsundoku Fund: Empowering curiosity, passion and purpose in memory of one wild and precious life—well-loved and well-lived, but far too short.  

We lost Elliot Everett Wright, our brilliant 26-year-old first-born son, on August 5, 2018, in a sudden and tragic single-vehicle motorcycle accident in Dallas, Texas.

A remarkable human, Elliot had more passions and interests than are possible to name, many emerging from books. And as a confirmed Japanophile, as well, he was wryly fond of the concept of tsundoku, the practice of collecting books—so many in fact, that they surround you in piles everywhere, read and unread. I believe this notion is quintessential Elliot—reflecting his insatiable curiosity on so many levels. His Uncle Doug said it best in his eulogy, “Elliot was a perspicacious boy—and the closest thing I knew to a human encyclopedia.”

In this spirit, we are creating a special fund in his memory—to fuel fervent passions that make dreams come true. Having ignited so many lives during his truncated time on earth, Elliot’s spark will never be extinguished. Through his “tsundoku fund,” he will continue to brighten the minds and hearts of fellow travelers, artists, learners, rebels, scholars, musicians, poets, and raconteurs who share his “perspicacity.”

Like piles of books, their projects are ”journeys ready to be taken,” but they require an angel gift, a timely contribution. The fund will likely consider proposals of all types—with a focus on education, literacy, music and travel. Currently, we are thinking grants may support:

  • Scholarships
  • Fees for classes, workshops or online certifications  similar to the one he pursued in Red Hat Linux programming that changed his professional life)
  • Travel to explore or study
  • Instructor-led lessons/training for any high-stakes pursuit, such as riding a motorcycle or flying an airplane
  • Open-source coding, music or literacy initiatives

Tax-deductible contributions will be welcome when the fund’s link goes live.

So, stay tuned . . . Please share your thoughts and ideas with me.

A View of the Summit: A Writing Retreat’s Unexpected Narrative Arc

It felt like kismet when I received the email.

“I’m writing because we just had a cancellation on the St. Paul writing retreat, and you’re number one on the waiting list,” it said.

And there it was — the inciting incident that launched my story.

When everything seemed to fall into place, I felt confident the August retreat would provide a welcome creative escape and a nurturing 60th birthday present to myself. After all, August is the most wicked of months. Since the death of my oldest son, Elliot, in August 2018, conflated with too many profound losses in recent years, I have written to grieve — and frankly, survive. Finding my writing roadmap was my objective for the week, but the universe had its own unique take in that.

Little did I know, this retreat would become the subject of my writing, as opposed to the enabler of it.

Perhaps that’s why the impact has been so seismic. Kind of like Dorothy in The Wizard of Oz, I was searching for something outside myself to help heal my shattered soul. But what I encountered was the startling real-time reality that said process is — and always will be — an inside job.

I realize now this transformative experience was less about my creative path and more about my grief journey.

Though I thought I had packed light, I arrived with some extra baggage. Turns out grief behaves like a clingy companion who never checks out and never leaves — brazenly taking up residence in every cell of your body. Sometimes, I feel like my son Ian’s lizard, Carlton, except I can’t ever seem to shed my stiffening outer layer of skin.

So, for this grief-ladened former extrovert, jumping into a bubbling broth of bright, witty women — who also happen to be ten perfect strangers — was a little like diving headfirst into 35-degree plunge pool. Game on, sister. Like riding a bicycle, yes, but also a stark reminder that I have become a completely different person since Elliot’s death.

“Be gentle with yourself,” said one of the angel voices in my head.

On paper (or online), this immersive writing experience felt almost magical — the “Oz” of writing retreats but still layered with complexities. At the top of the list was the pandemic. It was my first time on a plane in a year and a half. In her follow-up email, retreat leader Jess Lourey assured me they were following “Minnesota COVID guidelines,” and they had cut the attendance in half. It still felt strange. Then, there was the Twin Cities location — packed with backstory for me, now viewed through the traumatic lens of George Floyd’s tragic murder last year.

On the plus side, there were memories from my salad days as an intern in the mid-1980s at The Guthrie Theatre, including wacky adventures with my college pal Peter, who was a Minnesota native. It was a time when anything felt possible. From Mary Tyler Moore to Prince to friends in the area, it seemed like the ideal destination after an extended period of debilitating grief and isolation. There would be yoga, meditation, healthy food, and a community of brilliant women, peppered with sassy literary insights from Jess, accomplished writer and professor.

As I approached the shadowy Summit Avenue manse on that first day, it dripped with 19th century charm in a Grey Gardens sort of way. Its cluttered elegance felt both inviting and unsettling. Shabbier than chic, the front porch was festooned with overgrown hanging plants and clusters of peeling lounge chairs with faded cushions. Dangling strands of greenery enveloped the tattered lanai like a lacy antique tablecloth draped over my long-deceased grandmother’s dining table.

My room was on the so-called “garden level,” termed euphemistically since the vine-wrapped transom windows, barely peeking above ground level, had probably not been cracked open since 1925. I tried to appreciate the quaint appeal, but I was struggling to sleep and breathe in the dank basement room with no air conditioning. And the fans they dug out of the closet did not help the sullied, stagnate air situation at all. It felt like a blast furnace at night.  

This was not my beautiful retreat, nor the 60th birthday experience I had envisioned. Once again, my yin clobbered my yang. The blessing and the curse;  bitter and sweet; excruciating and transcendent. It was overwhelming, really—a mosaic of epiphanies, fears, tears, laughs, gold nuggets, connections, wine, hugs, more tears,  sleepless nights, perspiration, Kleenex, mucus, chocolate, thick coffee, and abundant charcuterie.

Let’s just say it was complicated.

In particular, a worsening runny nose and cough came into full bloom on day two, and an IM to my doctor to check symptoms resulted in what I feared.

“Yes, Elaine, get a  COVID test,” she instructed. “The variant is causing milder breakthrough symptoms in vaccinated people.”

I shared my concern with Cindy, one of the hosts, and she said, “Oh dear. I’m sorry. We don’t have liability insurance to drive you to get a test.”  

I was stunned, but fortunately, angels on earth do exist because Lea, my retreat compatriot, came my rescue. Survival mode is my natural state, so I did what was hardest for me—asked for help. My therapist would say I was over-functioning, but I needed a ride. Lea had driven from Rochester, Minnesota, my pal Peter’s hometown, so she had a car. We had hit it off on day one. I knew Lyft would not drive me to get a test, and I had no transportation.

Though I was vaccinated, I could not rest until I knew my status. How could I run the risk of infecting the retreat bubble with COVID? What would happen then? No one was masking. After all, I had come for Texas, where hospitalizations were rising. I was feeling my anxiety ramp up. Handling this was distracting and stressful, to say the least. Shattered any Zen vibe that might have been brewing. And a COVID test was definitely in sync with a restorative retreat I imagined. 

After extensive online searching with my dear Lea’s help, we found the only test available that day at a sketchy “emergency” COVID lab located in the industrial outskirts of St. Paul. It required prepayment, but I was game. We hit the road like Lucy and Ethel trying to find William Holden at 21. It was as hysterical as it was annoying. There were even some madcap antics when we could not find the poorly marked entrance behind the thick, uncut grass. We thought it was scam.

Lord, we giggled and gasped our way across the Twin Cities, laughing through our tears. And miraculously, for a couple of hours that afternoon, I felt my crusty lizard-grief skin dissolve into a puddle of silliness. For just a brief moment or two, I felt like me again — me with a cold, that is. Thank you, Lea for that unexpected glimpse of joy and your extreme generosity.

Not surprisingly, more intrigue ensued as I had to follow up when the results did not appear as promised within an hour. Apparently, the technician had stepped out for some wild rice soup, I guess, but they eventually found him, and it was negative. Thank God.

Back to our program in progress, Jess, our charming, brilliant and earthy retreat guru, was deep into her spectacular curriculum. It’s all a little foggy to tell you the truth, but I can tell from my notes that she offered a keen understanding of how to construct a narrative. It was all about finding clarity and giving yourself permission to sink into the power and value of your story. She was a font of practical knowledge, too — all the brass tacks and tricks to get ’er done. Meanwhile, Cindy, her perky and polished partner in crime, orchestrated our delicious moveable feasts and morning yogas with unflappable panache. Exhaling felt good — especially when the congestion cleared a bit.

But the heart connections among the women were the highlight. It’s ironic that words elude me to adequately describe the experience of a writing retreat, of being in the presence of these amazing soul sisters, but that’s probably because it feels as ephemeral as the tiny fuchsia morning glories that bloomed for only an hour or so in the sprawling backyard each day. Finding authentic community is rare — particularly in the brave new pandemic world. There was a little Oz in the mix.

So, in spite of the mayhem, I believe this week was a long overdue investment in my muse and myself. It taught me to go on cherishing the beauty in the tiniest glimmers of grace. I am grateful for the memories, motivation, momentum, and minor mending of my fractured heart. And I could not wait to get home to my air-conditioned bedroom.

Because there’s no place like home.

It’s All Grief to Me: 5 Things Grievers Would Like to Hear

Thankfully, I have found several groups for bereaved parents on Facebook. Yes, they are the yin to Facebook’s otherwise troubling yang, but the shattered hearts convened in them are full and present. They weave together the bitter and sweet, the dark and the light, the loss and the love. Thinking of Leonard Cohen’s wisdom, “There’s a crack in everything. That’s how the light gets in.”

These sacred conclaves provide safety and warmth in the midst of grief’s pervasive miasma. They have exacting parameters, like “Loss of an Adult Children,” “Sudden Death,” “Parents Who Have Lost Sons,” and “Refuge in Grief.” And their openheartedness is as transformative as it is devastating. In fact, their kind words often keep me functioning on my worst days. It’s a level of knowing no one else possesses. 

Part of the pain of living with the death of a child is the ancillary awkwardness of engaging with other people in the world every day. The tragic reality of losing a child is a stark identity that seeps into every interaction, whether expressed on the outside or fiercely contained on the inside. Every conversation is a reminder, ladened with trenchant decisions about what to say, how to say it or whether to say it at all. It’s like having two or three people arguing inside your head all the time.

A recent question on one of these precious groups sparked a deeper dive into my own lexicon of grief. A member posted, “What do people say that helps you most?” This intrigued me, as I thought taking inventory of what resonates with this group of irreparable hearts might help other humans who stumble around those struggling with grief or who avoid them completely.

Let’s start at the top. This list is full of contractions, but then, so is grief.

  1. Nothing

Say nothing. This might seem counterintuitive, but it makes perfect sense. This is about just being present, just saying you are present. That’s all. In pre-COVID times, it meant hugging, sitting next to you on the couch or just holding a hand silently. I think this is the ultimate comfort in grief—like sitting shiva in Judaism. You don’t have to talk or offer beverages or speak. Just be. Allow the pain without fixing, evangelizing, entertaining, cajoling or minimizing. Human presence is a divine gift and a relief. In writing, it translates as “I have no words, but I am here.” Or “my heart is with you.” The grace is in the spaces between.

2. “I am here.”

“I am here” gives a voice to the above. This response ranked high. As grief guru David Kessler says, “Grief must be witnessed to be healed.” Strange but true. “I am here.” “I see you.” “I hear you.” “I am here for you.” “I am here anytime, day or night.” “I am here when you need to talk or when you don’t want to talk.” This is the power of presence.

3. Say their names, share their memories

Casual acquaintances frequently shy away from saying my son Elliot’s name, and they sometimes visibly cringe if I do. But I love it when someone asks, “Will you share a favorite memory of Elliot?” Or says, “Let’s talk about Elliot. Remember when he  . . .” or “I want to tell you a story you might not about Elliot.” Saying their names keeps their memories alive—so personally and poignantly. The invitation to share a memory somehow propels his memory into the present moment instantly. He doesn’t feel so gone. For a brief  moment, it’s more sweet than bitter.

4. “I will never comprehend your pain.”

Every grief is different—as unique as every loss. Though we may share commonalities in our stories, the essential pain is our own. Offering acknowledgement of this can be very comforting and healing—like a specially compounded ointment. “I can’t possibly begin to know your pain or how you go on.” “I have no idea what you are going through, but I am here for you in any way I can be.” I suppose this is a riff on “I am here,” adding the shared dimension of incredulity.

5. Speak from your heart

You don’t have to fix. Just feel. “My heart breaks.” “My heart hurts.” “My heart bleeds.”  “My heart is next to yours.” “My heart is with you.” There is something visceral and intimate about these statements. It’s both physical and emotional. Elliot will always live in my heart and in the hearts of all those who adored him—the agony and the joy in one place.

I am in no way suggesting we should script such things. Far from it, but I would like to see us cultivate a greater ease and openness with loss—allowing space for its enormity to expand. It is scary, but we are here on the earth to be in relationship—to be better at being human in the hard times.

But as a grief-averse culture, we simply don’t have the everyday language around life’s most painful events. I find this ironic since the pandemic has made the immediacy of grief as much a part of life as the joy of birth. And yet, the social dialogue is still tense, brittle and detached. So much so, we continue to default to the perfunctory, “I’m so sorry for your loss.” How did this happen? I’m sorry . . . for your loss? It does not even make sense. You don’t need to apologize for my loss. And “sorry” is a flimsy word, like trying to put out a fire with a Dixie cup. Just feels inadequate.

In the ebb and flow of the pandemic, we are in a both/and world—forced to learn a new way to be as we live. There is no new normal. Perhaps, a new tolerable—with the occasional glimmer of joy. I want to learn to carry the loss and the love together, the grief and the grace. Grief will always be a part of who I am down to the marrow—not just something that happened to me I have to get over. The tap dance of OK-ness is utterly exhausting. But the dark pit of despair is no place to exist, either.

So, I’m not going to list the ridiculous clichés. You’ve heard them. You may even say them. (No judgement.) But here are a few other great words worth sharing from the collection:

This totally sucks, but I’ve got you.”

“I want to know everything about Elliot—when you are ready.”

“You will get to a place where the sting of the pain softens a bit. Until then, I will be here for you every step of the way.”

“I love you. You are loved . . . always.”

“It’s OK to not be OK for as long as it takes. Allow yourself to feel and grieve at your own pace.”

“If you want to share your pain, I will catch what I can. I am here to sit or listen, and hold a space for you.”

“I can’t take your pain away, but I do have a shoulder to cry on and ears to listen.”

Megan Devine, another one of my grief gurus says, “Acknowledgement makes things better even when they cannot be made right. It’s a radical act to allow others pain and sit beside them with it.” In the end, grief is love.

The Circles of Life

St. Michael and All Angels Columbarium Garden

Lately, I have been thinking about the events of 2018, the year my precious son Elliot died on August 5th. Though I had faced many mighty challenges in my half-century on the earth, this series of 365 days was like no other. It was a messy mélange of life, death, disruption, and grief—but looking back on it now, I’m increasingly befuddled by some of the other events that occurred in that most devastating year. I have mentioned a couple in prior posts that pondered probable connections to the cosmic unconsciousness, like “Quantum Ghosts”.

Could it be true that everything really is happening at the same time—like some quantum ball of tangled twine in another dimension of the time and space continuum? Is the concept of time (past, present, and future) really just a convenient construct? It’s overwhelming to think about too much but still intrigues me in a “Twilight Zone”/”Black Mirror” sort of way. As a side note, Elliot loved both those shows and even introduced me to “Black Mirror.” So why rule it out?

I wrote the post below on May 28, 2018—just two months before Elliot’s sudden, horrific, and unbearable motorcycle death. Like so much in my life now, rereading this essay was both profoundly disturbing and oddly comforting. There is so much we simply don’t understand—and likely never will in this tangible realm.  

______________________________________________________

“And Know the Place for the First Time” l May 28, 2018

Memories of those we have lost are often complicated—a morphing mosaic of longing, loneliness, anger, pain, guilt, sadness, gratitude, forgiveness, love and eventually, peace.

This Memorial Day I have come full circle in many ways. When my oldest son, Elliot, watched the “The Lion King” as a toddler, he called it “the circle guh-life.” Turns out that “guh” is profound because the circle is rarely a smooth curve. There are bumps and turns—which reminds me of the words of another Elliot – T.S., with one L:

“We shall not cease from exploration
And the end of all our exploring
Will be to arrive where we started
And know the place for the first time.”

I arrived there this week.

I began a new assignment writing copy but in a new context. I hope to shift out of the chaotic freelance writing world to work with an integrated marcom agency in Dallas for a while. Every change is an adjustment, every new adventure a realignment. Every experience, your teacher. I missed the energy of a creative cadre—a tribe of brilliant minds collaborating and concepting in real time. A place to belong. I guess I enjoy the process as much as the product.

The Universe works in mysterious ways—most of them unconscious. Life coach Mary Morrissey teaches, “First, notice what you are noticing. It’s the first step to self-awareness.” So, here’s what I have noticed – though I am starting over once again, I find myself in stunningly familiar territory. I am working in Preston Center, a shopping center just a few miles from where I grew up. It is like returning to the place “where I started”—probably holding more hidden nostalgia than any other place of my childhood.

And I’m seeing it for the first time.

I have been flooded with memories of shopping at Sanger Harris and the Woolworths dime store with my mom and sister when I was just 10 or 11. This was our primary recreational activity—a pocket of together time. An artist, reluctant teacher, and sometime socialite, my mother’s presence filled every room she entered in the outside world. On Saturdays, she adored shopping and visiting her flamboyant fashionista friend Mercedes, who ran the Elizabeth Arden counter at Sanger’s with great panache. They would chat and banter as Melissa and I “played” in the makeup, but her mission was to purchase her signature lipstick shade, Fuchsia Shock. It suited my mom’s mega-watt style, and it was the same shade she sported on her thick, one-inch nails.

Over the past few days, I have wandered the sidewalks of Sherry Lane and Westchester during my lunch breaks. A hip, trendy free-range hamburger boutique has replaced the greasy soda fountain at the Woolworth’s. And Wyatt’s cafeteria, with its wickedly sumptuous chocolate-icebox pie, is long gone—as it the dusty, cramped little store where I purchased my very first record. It was the debut album by The Partridge Family. Though I have lived in Dallas for most of my life, I have never experienced the emotional impact of this place before—not like this. Until now, these glimpses of my past have felt like they belonged to someone—and disconnected.

Perhaps, this is the beginning of my exploring.

On Wednesday, I left my 18th-floor office at noon, pausing for a startlingly raw moment. I noticed the high-rise across the street and recalled that faithful day more than three decades ago when I hopped into the back of shiny, white limo after my wedding reception on the top floor. I struggled to step into the skin of that ostensibly happy married girl. She felt like a character in a movie—unrelated and detached. I saw her in a crisp, purple size-10 linen suit she could wear only after losing 30 pounds on Weight Watchers. She was waving to the smiling people on sidewalk who were tossing fuchsia tissue-paper petals into the air.

I chose not to linger there.

Yet I could not avoid more of the strangely familiar. Not sure why, but I turned right at the corner—away from the shopping center and toward St. Michael’s and All Angels Church. This destination held its own mixed, messy bag of memories, but it lured me with a gravitas I could not explain. The last time I was there was 2014 for my father’s funeral and before that, 2012, for my mother’s memorial following her protracted illness. I also was married there in the sanctuary and attended elementary school at St. Michael’s School, where I always dreaded that excruciating President’s Physical Fitness Test. Though my parents did not attend services there or address spiritual matters much at all, it was our “church of record.”

How I remembered trying to find a way to belong there. I offered to help Mrs. Dienes, our perfectly pressed neighbor, teach kindergarten Sunday School when I was about 16. I borrowed my parents’ powder-blue Mercury Monarch with the white interior to get there by 9:00 a.m. I sang in the choir for Paul Thomas, who always scared me a little, and I attended the youth group led by Kyle Rote, Jr., the super-cute soccer star on the Dallas Tornado. Alas, despite all my valiant attempts, I never felt like I really fit in—as if I were missing that essential component that made me worthy of the Episcopal whole.

Still, this is where my parents’ ashes are residing for eternity. My stomach tumbled as I realized I was about to see them again. Serendipity—but no coincidence. I had not been back since my father’s interment. At once, I felt the weight of generations of secrets and shame enveloped in a warm wave of comfort. I stepped closer to the austere, yet elegant, monument. There they were, together for always and forever. So present and peaceful behind the pristine limestone plaque. I stared at the inscriptions and was suddenly overwhelmed. I grieved not for what we lost but what we never had. And in that moment, I made peace somehow. Then, I paused in pure awe as I considered the convoluted series of events that had brought me to this place at this moment. There I was—steeped in memories and standing with my parents once again as I prepared for a new future. Almost too much to process.

I closed my eyes and thanked the Universe for this miraculous journey and others to come. These are the moments that amplify our being beyond all comprehension.

Then, I thought of sipping a cool, creamy root beer float at Woolworth’s . . . and I smiled.

The 3 Cs of Grief

The gravity of grief is exhausting. I am talking about the micro and the macro of it—the micro being the weight of my own personal confederacy of  losses, and the macro, the gestalt of the world in crisis—the pandemic, isolation, climate change, social injustice, QAnon, Texas’ incompetent leadership, gun violence, the pain of lost children at the U.S. border seeking sanctuary, and the list goes on. Lately, I feel like I have hit a wall, a saturation point that has tarnished all my silver linings.

Most days, I find this perpetual state like a heavy weighted blanket, paradoxically as agitating as it is confining. (That might be my CPTSD talking.) But let’s face it—if you are human, you are dealing with crappy stuff. It’s part of the package, and the last year, two or four, have been tough for all of us. Grief is ubiquitous. Grief is insistent. Grief is oppressive. Grief is obstinate. Grief is transformative. It changes who we are because it changes the way we rub against the world. And yet, it is also one of the most potent reminders of our inherent humanness. As so many smart people have posited, we grieve to the degree we love. So, for those of us who suffer most, grief is never going away, but it may morph. And the exact way it morphs is as individual as a snowflake.  

That’s why addressing and processing grief head-on is essential.  I feel like I have a PhD in the subject by now, but that’s why I talk about so much. It’s what I feel called to do. My meaning. David Kessler, a gentle grief guru, says so eloquently:

Grief must be witnessed. Something profound happens when others see and hear and acknowledge our grief. Mourning is the outward expression of our grief. Conversely, something goes wrong when it remains unseen.

Profound and true, because the vulnerability of being witnessed authentically is what  restores your sense of wholeness and safety—even if it’s just for a nanosecond. And with a continuous queue of compassionate witnesses, we begin to truly transform and reach a place where we can carry the weight of the  grief burden—and eventually, carry on. We feel carried by the whole, and we realize we need community to heal.

Truly, acknowledging and validating grief is the most gracious gift you can give a broken heart. It opens up a space to breathe and thereby connect. It is the definition of grace, and regardless of your faith proclivities, grace is the place where we encounter the divine. There are no magic words required. You don’t even have to apologize. You really don’t need to say you are sorry for my loss or anything like that. This might be a new catchphrase or hashtag. Grief means never having to say your sorry. Just say you are present, and you cannot begin to comprehend the gravity of my loss. “There are no words. I am here.” That’s it. I consider those who can sit in silence or simply walk alongside me to be my angels on earth.

Still, grief in our culture is tricky because it’s the elephant in room—which translates into instant awkwardness. We don’t have the language for loss. We have never developed the interpersonal grief muscle, but why? Loss is universal, and being seen is the most potent balm. It’s just the closeness, context, and confluence of the loss (or losses) than can tip the scales, adding even more weight. Perhaps these are the three Cs of grief?

Closeness. This is nature or depth of the relationship. Though grief is not a competitive sport, there is particularly devastating wallop losing a child packs. It’s out of order and  life altering—even setting all other aspects aside. No matter how complicated the connection might have been, losing a child is like losing an appendage. You can technically go on living, but you have to relearn how to do everything.  In losing my spectacular and sometimes frustrating Elliot, I find the love and pain often conflate (another C). That intensifies the ache that erupts in these startling moments when I am unable to breathe or stop the sobs. Indeed, context is also a vexing conundrum. (Another C or two.)

Context. This refers to the particulars of your life at the time of the death and after. These factors are inescapable. The context has felt like a tightening vice around my experience. Elliot had found his groove. He had just scratched the surface of his potential. Tragic on so many levels. I just can’t bear it, so I  just keep moving. I try to muster empathy for myself, but it’s a challenge. I am training myself to acknowledge the tough feelings and release them. I’m kind of an emotional nomad—living on the edge and trying not to dwell in the stagnate stew underneath for any length of time. I feel so detached and untethered. Thank God, I have my moments of precious connection with friends but nothing durable. Some days, maintaining the “I’m OK” exterior is so exhausting I just mentally vamp. Tread water. Barely. Put one foot in front of the other. That’s all I can do. Yet something about this bifurcation in the isolation of my silent, compact office in front of three computer screens makes it even more debilitating.          

Confluence.  The pieces of me, the factors that have come together in this life now—after Elliot. As a single mom of a 24-year-old son, I must constantly remind myself to give my Ian the space he needs to forge his own path. That’s both difficult and easy.  Beautiful and desolate. Fulfilling and draining. I feel I am performing over the center ring without a net, flying the airplane without a parachute—when all I really want is a safe place to land. Emphasis on “safe.”

I know I need to find a way to be in the world. Half of me feels like it no longer operates in sync with the rest of me—the definition of yin and yang. Numb, heavy, confused and anxious. Time is sluggish and accelerating—all at the same time. Perhaps it’s the lumbering repetitiveness of COVID existence—sorrow, grief and isolation make an unappetizing cocktail.  I have lost that unconscious optimistic autopilot that helped me know I would be OK; I would figure it out one day. But now, everything is hard, feels off center and precarious in this context of fear and uncertainty  It’s hard to flex the over-functioning muscle that’s always been my default coping mechanism. I guess my grief therapist would say that’s progress, but I say it’s harrowing. Definitely accounts got the vacuousness, the feeling of perpetual flimsiness. And the futility of this awful, new normal existence.

I am constantly aware of the vast, dank abyss I teeter over. Sounds dramatic, I know, but I am a half, maybe even a third of a person now. Am I missing the part that died with Elliot? Will my heart regenerate. Will my soul? I want the comfort and connection others can bring and simultaneously want to be with alone. I have no interest in banter, but it used to be my fuel, my raison d’etre. Still, I am grateful for so much—an extraordinary son, caring friends, my writing, a new job that challenges me, and a lovely roof over my head.

I am different now.

And maybe, there are more than 3 Cs—maybe five, six of seven. They all apply at one time or another, but the most important one is not a C at all. It’s a G—grace. Cherishing those transcendent moments that remind me I am part of something much bigger than my own rumination.

I must keep clearing the space to let in the light.

House of Comfort

I am honored to be included in this beautiful collection of art, poetry, and essays. “House of Comfort” is part of a series compiled by Gretchen Martens for The Retreat House Spirituality Center in Richardson, Texas. It’s a deeply moving journey—poignant yet powerful, intimate yet universal. Here is a taste:

The Gap

Off-kilter—
Everything feels out of whack,
out of sync—
Uncomfortable in my own skin.
Is there a place between the yin and the yang?
Where nothing and everything meet?
The push and the pull.
The yes and the no
Bitter and sweet
To and fro
Black and white
Pleasure and pain
Progress and regress
Abel and Kane
Now and forever
You and me
Off and on
Captive and free
Stuck there. I am
Like Scylla and Charybdis
the space in between
but filled with emptiness.
What should I do?
[My favorite FAQ.]
Nowhere feels right.
Says the voice in my head,
“Wherever you go, there you are,”
Who is it? Can’t shake it. So bizarre.
Since I lost so much.
Since I lost my baby boy,
Since I lost
My bearings. My heart. My joy.
The thread I hang by.
“Get over it. Buck up.”
[Programming reverb.
Doesn’t it suck?]
How I’ve tried to retool and rewire.
All the trauma and the pain.
Yet tears fall fast in the blink of my eye
“Isn’t it just such a shame?”
A wisp, faint susurrus—Elliot’s breath?
To feel. To embrace. No regret.
To listen. To wonder. To hold. To know.
But where? How? Where did he go?
And where is he now?
“I am here, mom,” he said.
But not really at all.
Mysterious. Dead.
As in life. So prickly
on the other side.
But it’s not right.
Out of joint.
Out of order.
Out of my mind.
I just can’t think.
So many questions.
Nary an answer caught in my sigh.
To how? To what if? And still to why?
Without parent nor child.
Both gone in between.
Mostly alone, half-mother unseen.
A daughter, a sister, a cousin,
a niece, a granddaughter—
not. Rest but no peace.
Together. Alone.
By myself.
There, I go the darkest place,
my miasma in tow.
“You’re fine. Buck up,” she says with a grin.
Not until I feel. [Who said that?]
“Oh, just take it on the chin.”
Those voices are real.
But what I did not expect—
I am here by grace—
to forgive, not forget.

I Am

A week or so before snowmageddon stymied Texas, my dear friend and writing pal Sue recommended a book called “When Women Were Birds,” by Terry Tempest Williams. I’m endlessly grateful, as it provided a warm and poignant embrace during the powerless hours. If Anne Lamott says it’s “brilliant, meditative, and full of surprises, wisdom, and wonder,” you can bet it’s a winner. As I sat on my big purple couch in the frigid darkness, swaddled in three blankets with a flashlight precariously perched on one knee, I devoured Williams’ evocative, lyrical prose and was instantly inspired to scribble this poem — just before the electricity sizzled back on for another brief round:

I Am

I am worn out.
I am scared.
I am alone.
I am freezing.
I can almost see my breath.

I am a balloon that is slowly deflating.
I am an opaque mosaic of dusty shards
that don’t quite fit.
I am the map of another country.
I am overwhelmed.
I am underemployed.
I am seeking.
I am hiding.
I am not knowing . . .
I am fried.

I am filled with emptiness.
I am hollow with grief.
I am here but not present.
I am shallow but deep.

I am aching to be seen, but I don’t want to be noticed.
I am yearning to connect but no energy to speak.
I am salt in the wound.
I am salve on the sore.
I am dented but still running.
Where is the door?

I am shadow.
I am moonlight.
I am desire.
I am disdain.
I am letting go.
I am holding on.
I am selfish.
I am shame.

I am kind.
I am cold.
I am love.
I am lost.

I am waiting in the wings.
I am milling in the mezzanine.
I am loitering in the lobby.
Where is the stage?
I am scripts unwritten.
I am books unread.
I am the Rock of Gibraltar.
I am the tools in the shed.
I am a frothy, white jet trail.
I am blood-orange sunshine.
I am Purple Rain.
I am Auld Lang Syne

I am select soccer and team tennis.
I am saxophone lessons and art classes.
I am ear infections and root canals.
I am a pair of new dark glasses.
I am fistfights in the kitchen.
I am boxes in the hall.
I am lullabies in the nursery.
I am drawings on the wall.

I am sighing
I am sobbing
I am wailing
I am praying
I am allowing
I am inviting
I am chuckling
I am fraying

I am a sutra unraveled, but
I am whole.

I am a cotton shirt, not pressed.
I am a pair of jeans, too tight.
I am a child without a mother.
I am a mother full of fright.
I am the tears in a handkerchief.
I am the words on the page.
I am a candle in the window.
I am a flashlight in the dark.
I am a sip of black tea.
I am a broken heart.

I am an imposter and an expert —
respected and dismayed.
I am confident and confused —
anxious and praised.

I am stardust.
I am golden.
I am taking.
I am giving.
I am releasing
Now
Forever
And for you, I am living.

Grieving Power: Finding Your Way in the Dark

Life is precarious.

Texas and the universe demonstrated this truth with debilitating intensity last week. Indeed, we are living in a time of radical transformation, a period without predictability or security. Socioeconomic upheaval, geopolitical unrest, erupting racial tensions, escalating cybersecurity threats, and climate change are all coming to a head. And oh, and this is all happening in the midst of a global pandemic.

I will admit I am hypersensitive as I navigate the agony of my own grief, but the world is becoming increasingly fragile and complicated. Control is an illusion. Sure, we can decide whether we turn on a flashlight or light a candle in a blackout, but how do we manage our lives with any kind of certainty? So many directions, but nowhere to go.

When most all the infrastructure services that are designed to support and protect us in arctic temperatures fail catastrophically, our trust evaporates. And we panic. Plus, we’re back to ground zero on Maslow’s famed hierarchy of needs. Forget self-actualization — I’ll settle for flushing my toilet.

And amplifying the precariousness is the capriciousness of it all. Some people are still without any power in Texas; some are boiling every sip of water they drink; others are recovering from extended rolling blackouts (like us), and others had no disruption at all. Then, there are the food supply-chain disruptions happening now and broken pipes everywhere you turn.

Yet through all the chaos, I have been grateful. I have appreciated my 24-year-old son Ian’s calm, grounded presence, as well as the kind texts from friends across the country who checked on us — though I could not always read them in real-time, because our cell service was toast, too. I was grateful for the vigilance of our building management and our dedicated maintenance team. They worked tirelessly to repair broken pipes, open locked-down security doors, and silence errant fire alarms. I may say everything reminds me of “The Twilight Zone,” but the building seemed to have a will of its own at times — like it was mischievously misbehaving.

As the days oozed into nights without power, heat, internet, or cell service, I also remembered the “Twilight Zone” episode called “Midnight Sun.” Lois Nettleton played an artist who was suffering in stifling summer heat, painting abstract canvasses dripping with pigment. Alas, the earth had fallen out of its orbit and was moving closer to its central star. The obligatory twist occurs (spoiler alert) when the opposite is true. In actuality, artist Lois has been nursing a raging fever. When it breaks, we discover the earth has been plunged into sub-zero temps as it is jettisoned from the sun’s orbit. A potent metaphor.

“Twilight Zone” or not, I was scared.

I still am, but I’m aware my fear is exacerbated by the trauma and shock associated with losing my precious 26-year-old son Elliot in a flash of indifferent tragedy 30 months ago. His untimely, out-of-order death continues to rattle me to the core, each and every day — so sudden, senseless and shocking. C.S. Lewis said, “Grief is like fear, but you are not afraid.”  Well, in this case, you are. It’s apropos of everything these days — this feeling of utter, urgent precariousness and instability. The kind of complicated grief traps you like a hostage in a boundless fog of disconnection and anguish. I am always balancing on a precipice – looking for a way to hold on and live in a world that is forever changed.

Dr. Todd Miller, our wise and wonderful eye doctor, had a rare simpatico with Elliot. They would banter incessantly about music and technology. Dr. Miller also was enamored with motorcycles in his youth. I deeply appreciate his perspective and that he allows me to talk of Elliot and my grief whenever I see him.

“The appeal of riding is like finding the ‘sweet spot’ between pleasure and fear,” Dr. Miller said. “It’s a balance, a kind of calculated risk.”  But what kind of formula do you use to calculate such a risk?

I cannot dwell on these questions, though they continue to haunt me. Still, I have come to realize that fear is a common part of grief. And precariousness is woven into the fabric of our existence — more salient now than ever. Life is ephemeral. Fleeting. Then, gone. Combine that with the ambient grief we share for a confederacy of losses in the pandemic, summarily splashed across social media. It feels like we are slogging through some kind of mind-bending Truman Show.

I am coming to accept that all life is precarious — a temporary gift we must respect and nurture as best we can. Our souls are all on different journeys, and that includes our children.  A spiritual medium once said to me, “Our children are not ours. They just come through us.”  

As the snowmageddon crisis in Texas has taught us, we are not in control — even when we think we are and even when are just sitting on the couch.

Turns out, we are just along for the ride.

My Precarious Boy

I need to find a crack to breathe in
this stolid suspended chasm.
Empty moments dissolve into heavy hours —
to make bearable being awake.
Persistent memory.
Present absence.
Precarious life
now that
saline tears debride the unhealable
wound forever —
a faint shadow,
cast in the light of his darkness.
So raw and exposed but not seen.