It’s All Grief to Me: 5 Things Grievers Would Like to Hear

Thankfully, I have found several groups for bereaved parents on Facebook. Yes, they are the yin to Facebook’s otherwise troubling yang, but the shattered hearts convened in them are full and present. They weave together the bitter and sweet, the dark and the light, the loss and the love. Thinking of Leonard Cohen’s wisdom, “There’s a crack in everything. That’s how the light gets in.”

These sacred conclaves provide safety and warmth in the midst of grief’s pervasive miasma. They have exacting parameters, like “Loss of an Adult Children,” “Sudden Death,” “Parents Who Have Lost Sons,” and “Refuge in Grief.” And their openheartedness is as transformative as it is devastating. In fact, their kind words often keep me functioning on my worst days. It’s a level of knowing no one else possesses. 

Part of the pain of living with the death of a child is the ancillary awkwardness of engaging with other people in the world every day. The tragic reality of losing a child is a stark identity that seeps into every interaction, whether expressed on the outside or fiercely contained on the inside. Every conversation is a reminder, ladened with trenchant decisions about what to say, how to say it or whether to say it at all. It’s like having two or three people arguing inside your head all the time.

A recent question on one of these precious groups sparked a deeper dive into my own lexicon of grief. A member posted, “What do people say that helps you most?” This intrigued me, as I thought taking inventory of what resonates with this group of irreparable hearts might help other humans who stumble around those struggling with grief or who avoid them completely.

Let’s start at the top. This list is full of contractions, but then, so is grief.

  1. Nothing

Say nothing. This might seem counterintuitive, but it makes perfect sense. This is about just being present, just saying you are present. That’s all. In pre-COVID times, it meant hugging, sitting next to you on the couch or just holding a hand silently. I think this is the ultimate comfort in grief—like sitting shiva in Judaism. You don’t have to talk or offer beverages or speak. Just be. Allow the pain without fixing, evangelizing, entertaining, cajoling or minimizing. Human presence is a divine gift and a relief. In writing, it translates as “I have no words, but I am here.” Or “my heart is with you.” The grace is in the spaces between.

2. “I am here.”

“I am here” gives a voice to the above. This response ranked high. As grief guru David Kessler says, “Grief must be witnessed to be healed.” Strange but true. “I am here.” “I see you.” “I hear you.” “I am here for you.” “I am here anytime, day or night.” “I am here when you need to talk or when you don’t want to talk.” This is the power of presence.

3. Say their names, share their memories

Casual acquaintances frequently shy away from saying my son Elliot’s name, and they sometimes visibly cringe if I do. But I love it when someone asks, “Will you share a favorite memory of Elliot?” Or says, “Let’s talk about Elliot. Remember when he  . . .” or “I want to tell you a story you might not about Elliot.” Saying their names keeps their memories alive—so personally and poignantly. The invitation to share a memory somehow propels his memory into the present moment instantly. He doesn’t feel so gone. For a brief  moment, it’s more sweet than bitter.

4. “I will never comprehend your pain.”

Every grief is different—as unique as every loss. Though we may share commonalities in our stories, the essential pain is our own. Offering acknowledgement of this can be very comforting and healing—like a specially compounded ointment. “I can’t possibly begin to know your pain or how you go on.” “I have no idea what you are going through, but I am here for you in any way I can be.” I suppose this is a riff on “I am here,” adding the shared dimension of incredulity.

5. Speak from your heart

You don’t have to fix. Just feel. “My heart breaks.” “My heart hurts.” “My heart bleeds.”  “My heart is next to yours.” “My heart is with you.” There is something visceral and intimate about these statements. It’s both physical and emotional. Elliot will always live in my heart and in the hearts of all those who adored him—the agony and the joy in one place.

I am in no way suggesting we should script such things. Far from it, but I would like to see us cultivate a greater ease and openness with loss—allowing space for its enormity to expand. It is scary, but we are here on the earth to be in relationship—to be better at being human in the hard times.

But as a grief-averse culture, we simply don’t have the everyday language around life’s most painful events. I find this ironic since the pandemic has made the immediacy of grief as much a part of life as the joy of birth. And yet, the social dialogue is still tense, brittle and detached. So much so, we continue to default to the perfunctory, “I’m so sorry for your loss.” How did this happen? I’m sorry . . . for your loss? It does not even make sense. You don’t need to apologize for my loss. And “sorry” is a flimsy word, like trying to put out a fire with a Dixie cup. Just feels inadequate.

In the ebb and flow of the pandemic, we are in a both/and world—forced to learn a new way to be as we live. There is no new normal. Perhaps, a new tolerable—with the occasional glimmer of joy. I want to learn to carry the loss and the love together, the grief and the grace. Grief will always be a part of who I am down to the marrow—not just something that happened to me I have to get over. The tap dance of OK-ness is utterly exhausting. But the dark pit of despair is no place to exist, either.

So, I’m not going to list the ridiculous clichés. You’ve heard them. You may even say them. (No judgement.) But here are a few other great words worth sharing from the collection:

This totally sucks, but I’ve got you.”

“I want to know everything about Elliot—when you are ready.”

“You will get to a place where the sting of the pain softens a bit. Until then, I will be here for you every step of the way.”

“I love you. You are loved . . . always.”

“It’s OK to not be OK for as long as it takes. Allow yourself to feel and grieve at your own pace.”

“If you want to share your pain, I will catch what I can. I am here to sit or listen, and hold a space for you.”

“I can’t take your pain away, but I do have a shoulder to cry on and ears to listen.”

Megan Devine, another one of my grief gurus says, “Acknowledgement makes things better even when they cannot be made right. It’s a radical act to allow others pain and sit beside them with it.” In the end, grief is love.

Grieving from the Inside Out

“Grief is universal, but every person’s grief is unique,”  says grief counselor David Kessler.

This duality is potent, especially in recent days. The collective grief that surrounds us now is overwhelming—the weight of mounting COVID casualties, the ongoing horror of senseless police violence, and the alarming escalation of gun massacres in this country. Along with the enormity of these disturbing realities, so many of us also carry the achingly personal losses that seem to cling to us like cobwebs in a dank, gloomy basement.

Grief is an ambient constant.

Having lost my oldest son, Elliot, and many family members over the past decade, my experience of grief is always changing, deepening, expanding, and contracting, but it is always there. It morphs and shifts into different flavors of PTSD, anxiety, depression, and despair, but gradually, I am becoming more aware of my most salient triggers. Slowly but surely, I am integrating effective self-management techniques—like grounding, breathing, meditation, mindfulness, and counseling. Still, grief is inextricably attached to my being—insistent, obnoxious and endlessly dogmatic. There is no escape, no place to hide, no satisfying its demands. Not even in sleep. There is no pill nor spirit.

Grief is relentless and narcissistic.

Grief both shrouds and accentuates the stubborn presence of loss. Grief is everywhere and in everything, like the trauma bond of an abusive relationship. You can’t live with it, and you can’t live without it. Grief changes all of your relationships—at times isolating you from your friends, family, and the community you need to heal. You are a different person in a toxic relationship and in the dance of grief. You often find yourself reassuring others you are OK—when you are not. You may even try to run away or distract yourself, but grief is persistent and undaunted. Wherever you go, there you are. And the dark truth is that part of you does not want to let go, because at least, the pain is connection.

Grief is not just something inside that you have to work through.

Grief is also on the outside, always next to you. It’s beside you, behind you, in front of you, over you, under you—hovering like a long shadow, even in the dark. Some say losing a child is like losing a limb. You can survive it, but you must relearn how to do everything. However, I think it’s also like gaining a limb you don’t want—an extra arm or leg you must constantly contend with, manage, or even hide. And it’s always in your way, awkward, and obstructive. You must relearn everything, but you still cannot escape it.

Do you acknowledge it immediately when meeting someone? Or do you pretend it’s not there, which can draw even more unspoken attention to it? How do you live with such an abnormality? There are no easy answers, and it’s a confusing question in a culture that minimizes and compartmentalizes grief to avoid its discomfort. So, how do you find meaning in life? Do mundane tasks even matter at all when the worst has already happened? But that’s where compassion is essential—individually and collectively. Things like meeting a deadline at work of separating out the recycling may not seem to matter much in a universe tainted by unbearable loss, but we must keep going.

And more important, we must be intentional about caring for each other, showing up, and creating a space for mattering. For me, regardless of how I conceptualize it, the gravity of grief informs every interaction, every experience, every conversation. Hopefully, over time, I will become more accustomed to its presence. I know I must find a way to accommodate grief if I am going to function in the world.

Yes, I am different now, and I work every day to accept this journey.

Grief will always be part of me, just as my love for my son Elliot will be. And grief will always be a layer between me and everything else. Whether a thin, hyaline veil or an imposing brick wall, at times it’s murky black and at others, sparklingly light. The light is the precious part, the awful glimmer of grief. That’s what illuminates the gold, the gleaming memories of a lifetime that will never die.

Together we can do our best to soften the fear, the anxiety, the alienation, and the pain—inside and out.

The 3 Cs of Grief

The gravity of grief is exhausting. I am talking about the micro and the macro of it—the micro being the weight of my own personal confederacy of  losses, and the macro, the gestalt of the world in crisis—the pandemic, isolation, climate change, social injustice, QAnon, Texas’ incompetent leadership, gun violence, the pain of lost children at the U.S. border seeking sanctuary, and the list goes on. Lately, I feel like I have hit a wall, a saturation point that has tarnished all my silver linings.

Most days, I find this perpetual state like a heavy weighted blanket, paradoxically as agitating as it is confining. (That might be my CPTSD talking.) But let’s face it—if you are human, you are dealing with crappy stuff. It’s part of the package, and the last year, two or four, have been tough for all of us. Grief is ubiquitous. Grief is insistent. Grief is oppressive. Grief is obstinate. Grief is transformative. It changes who we are because it changes the way we rub against the world. And yet, it is also one of the most potent reminders of our inherent humanness. As so many smart people have posited, we grieve to the degree we love. So, for those of us who suffer most, grief is never going away, but it may morph. And the exact way it morphs is as individual as a snowflake.  

That’s why addressing and processing grief head-on is essential.  I feel like I have a PhD in the subject by now, but that’s why I talk about so much. It’s what I feel called to do. My meaning. David Kessler, a gentle grief guru, says so eloquently:

Grief must be witnessed. Something profound happens when others see and hear and acknowledge our grief. Mourning is the outward expression of our grief. Conversely, something goes wrong when it remains unseen.

Profound and true, because the vulnerability of being witnessed authentically is what  restores your sense of wholeness and safety—even if it’s just for a nanosecond. And with a continuous queue of compassionate witnesses, we begin to truly transform and reach a place where we can carry the weight of the  grief burden—and eventually, carry on. We feel carried by the whole, and we realize we need community to heal.

Truly, acknowledging and validating grief is the most gracious gift you can give a broken heart. It opens up a space to breathe and thereby connect. It is the definition of grace, and regardless of your faith proclivities, grace is the place where we encounter the divine. There are no magic words required. You don’t even have to apologize. You really don’t need to say you are sorry for my loss or anything like that. This might be a new catchphrase or hashtag. Grief means never having to say your sorry. Just say you are present, and you cannot begin to comprehend the gravity of my loss. “There are no words. I am here.” That’s it. I consider those who can sit in silence or simply walk alongside me to be my angels on earth.

Still, grief in our culture is tricky because it’s the elephant in room—which translates into instant awkwardness. We don’t have the language for loss. We have never developed the interpersonal grief muscle, but why? Loss is universal, and being seen is the most potent balm. It’s just the closeness, context, and confluence of the loss (or losses) than can tip the scales, adding even more weight. Perhaps these are the three Cs of grief?

Closeness. This is nature or depth of the relationship. Though grief is not a competitive sport, there is particularly devastating wallop losing a child packs. It’s out of order and  life altering—even setting all other aspects aside. No matter how complicated the connection might have been, losing a child is like losing an appendage. You can technically go on living, but you have to relearn how to do everything.  In losing my spectacular and sometimes frustrating Elliot, I find the love and pain often conflate (another C). That intensifies the ache that erupts in these startling moments when I am unable to breathe or stop the sobs. Indeed, context is also a vexing conundrum. (Another C or two.)

Context. This refers to the particulars of your life at the time of the death and after. These factors are inescapable. The context has felt like a tightening vice around my experience. Elliot had found his groove. He had just scratched the surface of his potential. Tragic on so many levels. I just can’t bear it, so I  just keep moving. I try to muster empathy for myself, but it’s a challenge. I am training myself to acknowledge the tough feelings and release them. I’m kind of an emotional nomad—living on the edge and trying not to dwell in the stagnate stew underneath for any length of time. I feel so detached and untethered. Thank God, I have my moments of precious connection with friends but nothing durable. Some days, maintaining the “I’m OK” exterior is so exhausting I just mentally vamp. Tread water. Barely. Put one foot in front of the other. That’s all I can do. Yet something about this bifurcation in the isolation of my silent, compact office in front of three computer screens makes it even more debilitating.          

Confluence.  The pieces of me, the factors that have come together in this life now—after Elliot. As a single mom of a 24-year-old son, I must constantly remind myself to give my Ian the space he needs to forge his own path. That’s both difficult and easy.  Beautiful and desolate. Fulfilling and draining. I feel I am performing over the center ring without a net, flying the airplane without a parachute—when all I really want is a safe place to land. Emphasis on “safe.”

I know I need to find a way to be in the world. Half of me feels like it no longer operates in sync with the rest of me—the definition of yin and yang. Numb, heavy, confused and anxious. Time is sluggish and accelerating—all at the same time. Perhaps it’s the lumbering repetitiveness of COVID existence—sorrow, grief and isolation make an unappetizing cocktail.  I have lost that unconscious optimistic autopilot that helped me know I would be OK; I would figure it out one day. But now, everything is hard, feels off center and precarious in this context of fear and uncertainty  It’s hard to flex the over-functioning muscle that’s always been my default coping mechanism. I guess my grief therapist would say that’s progress, but I say it’s harrowing. Definitely accounts got the vacuousness, the feeling of perpetual flimsiness. And the futility of this awful, new normal existence.

I am constantly aware of the vast, dank abyss I teeter over. Sounds dramatic, I know, but I am a half, maybe even a third of a person now. Am I missing the part that died with Elliot? Will my heart regenerate. Will my soul? I want the comfort and connection others can bring and simultaneously want to be with alone. I have no interest in banter, but it used to be my fuel, my raison d’etre. Still, I am grateful for so much—an extraordinary son, caring friends, my writing, a new job that challenges me, and a lovely roof over my head.

I am different now.

And maybe, there are more than 3 Cs—maybe five, six of seven. They all apply at one time or another, but the most important one is not a C at all. It’s a G—grace. Cherishing those transcendent moments that remind me I am part of something much bigger than my own rumination.

I must keep clearing the space to let in the light.