Cherishing Elliot’s Memory Forever:  Building a Fund to Empower Dreams and Perpetuate Hope

I’m not sure why.

But I have had trouble moving forward with setting up a fund to honor my son Elliot’s memory. Peculiar, because typically, my to-do list is my go-to coping mechanism. Human doing, as opposed to human being, as they say, but I‘m learning. Still, this particular task has overwhelmed me in persistent ways since Elliot’s shocking death three years ago. Maybe the concept of a memorial fund is just too much to bear on top of everything else. Or maybe it’s because Elliot’s passions defined him so thoroughly that containing them in an administrative apparatus feels inadequate. Regardless, as Roland Barthes states in his brilliant book, Mourning Diary, “The finality of death is unavoidable.” 

Maybe I’m just stuck in denial.

But it’s a murky, dark, and anxiety-producing kind of denial. From the lingering questions about what actually happened that horrible day, to festering fantasies of his being spirited away by some secret dark-web intrigue, to a myriad of other what-ifs and inconsistencies, there’s no relief. Only an agonizing series of dead ends that fail to scumble the sharp edges of my broken heart.

Grieving this way feels excruciating and relentless.

As I travel down this exhausting and painful road, surrounded by a pandemic and a world in constant turmoil, I have come to realize that it is imperative that I recognize and cherish every shift, every exhale, every glimmer of possibility—no matter how tiny. Though they are not always easy, these baby steps are where meaning lurks, and in grief, meaning is essential for survival.

Therefore, I am taking a step.

Elliot’s father, Max, and I have decided to move ahead with creating a donor-advised fund with the Communities Foundation of Texas in memory of our sorely missed son, Elliot Everett Wright. We are still ironing out the details, but we will be launching it soon. And you will have the opportunity to participate as we amplify Elliot’s memory together.

Here are some initial musings . . .  

The Elliot Everett Wright Tsundoku Fund: Empowering curiosity, passion and purpose in memory of one wild and precious life—well-loved and well-lived, but far too short.  

We lost Elliot Everett Wright, our brilliant 26-year-old first-born son, on August 5, 2018, in a sudden and tragic single-vehicle motorcycle accident in Dallas, Texas.

A remarkable human, Elliot had more passions and interests than are possible to name, many emerging from books. And as a confirmed Japanophile, as well, he was wryly fond of the concept of tsundoku, the practice of collecting books—so many in fact, that they surround you in piles everywhere, read and unread. I believe this notion is quintessential Elliot—reflecting his insatiable curiosity on so many levels. His Uncle Doug said it best in his eulogy, “Elliot was a perspicacious boy—and the closest thing I knew to a human encyclopedia.”

In this spirit, we are creating a special fund in his memory—to fuel fervent passions that make dreams come true. Having ignited so many lives during his truncated time on earth, Elliot’s spark will never be extinguished. Through his “tsundoku fund,” he will continue to brighten the minds and hearts of fellow travelers, artists, learners, rebels, scholars, musicians, poets, and raconteurs who share his “perspicacity.”

Like piles of books, their projects are ”journeys ready to be taken,” but they require an angel gift, a timely contribution. The fund will likely consider proposals of all types—with a focus on education, literacy, music and travel. Currently, we are thinking grants may support:

  • Scholarships
  • Fees for classes, workshops or online certifications  similar to the one he pursued in Red Hat Linux programming that changed his professional life)
  • Travel to explore or study
  • Instructor-led lessons/training for any high-stakes pursuit, such as riding a motorcycle or flying an airplane
  • Open-source coding, music or literacy initiatives

Tax-deductible contributions will be welcome when the fund’s link goes live.

So, stay tuned . . . Please share your thoughts and ideas with me.

It’s All Grief to Me: 5 Things Grievers Would Like to Hear

Thankfully, I have found several groups for bereaved parents on Facebook. Yes, they are the yin to Facebook’s otherwise troubling yang, but the shattered hearts convened in them are full and present. They weave together the bitter and sweet, the dark and the light, the loss and the love. Thinking of Leonard Cohen’s wisdom, “There’s a crack in everything. That’s how the light gets in.”

These sacred conclaves provide safety and warmth in the midst of grief’s pervasive miasma. They have exacting parameters, like “Loss of an Adult Children,” “Sudden Death,” “Parents Who Have Lost Sons,” and “Refuge in Grief.” And their openheartedness is as transformative as it is devastating. In fact, their kind words often keep me functioning on my worst days. It’s a level of knowing no one else possesses. 

Part of the pain of living with the death of a child is the ancillary awkwardness of engaging with other people in the world every day. The tragic reality of losing a child is a stark identity that seeps into every interaction, whether expressed on the outside or fiercely contained on the inside. Every conversation is a reminder, ladened with trenchant decisions about what to say, how to say it or whether to say it at all. It’s like having two or three people arguing inside your head all the time.

A recent question on one of these precious groups sparked a deeper dive into my own lexicon of grief. A member posted, “What do people say that helps you most?” This intrigued me, as I thought taking inventory of what resonates with this group of irreparable hearts might help other humans who stumble around those struggling with grief or who avoid them completely.

Let’s start at the top. This list is full of contractions, but then, so is grief.

  1. Nothing

Say nothing. This might seem counterintuitive, but it makes perfect sense. This is about just being present, just saying you are present. That’s all. In pre-COVID times, it meant hugging, sitting next to you on the couch or just holding a hand silently. I think this is the ultimate comfort in grief—like sitting shiva in Judaism. You don’t have to talk or offer beverages or speak. Just be. Allow the pain without fixing, evangelizing, entertaining, cajoling or minimizing. Human presence is a divine gift and a relief. In writing, it translates as “I have no words, but I am here.” Or “my heart is with you.” The grace is in the spaces between.

2. “I am here.”

“I am here” gives a voice to the above. This response ranked high. As grief guru David Kessler says, “Grief must be witnessed to be healed.” Strange but true. “I am here.” “I see you.” “I hear you.” “I am here for you.” “I am here anytime, day or night.” “I am here when you need to talk or when you don’t want to talk.” This is the power of presence.

3. Say their names, share their memories

Casual acquaintances frequently shy away from saying my son Elliot’s name, and they sometimes visibly cringe if I do. But I love it when someone asks, “Will you share a favorite memory of Elliot?” Or says, “Let’s talk about Elliot. Remember when he  . . .” or “I want to tell you a story you might not about Elliot.” Saying their names keeps their memories alive—so personally and poignantly. The invitation to share a memory somehow propels his memory into the present moment instantly. He doesn’t feel so gone. For a brief  moment, it’s more sweet than bitter.

4. “I will never comprehend your pain.”

Every grief is different—as unique as every loss. Though we may share commonalities in our stories, the essential pain is our own. Offering acknowledgement of this can be very comforting and healing—like a specially compounded ointment. “I can’t possibly begin to know your pain or how you go on.” “I have no idea what you are going through, but I am here for you in any way I can be.” I suppose this is a riff on “I am here,” adding the shared dimension of incredulity.

5. Speak from your heart

You don’t have to fix. Just feel. “My heart breaks.” “My heart hurts.” “My heart bleeds.”  “My heart is next to yours.” “My heart is with you.” There is something visceral and intimate about these statements. It’s both physical and emotional. Elliot will always live in my heart and in the hearts of all those who adored him—the agony and the joy in one place.

I am in no way suggesting we should script such things. Far from it, but I would like to see us cultivate a greater ease and openness with loss—allowing space for its enormity to expand. It is scary, but we are here on the earth to be in relationship—to be better at being human in the hard times.

But as a grief-averse culture, we simply don’t have the everyday language around life’s most painful events. I find this ironic since the pandemic has made the immediacy of grief as much a part of life as the joy of birth. And yet, the social dialogue is still tense, brittle and detached. So much so, we continue to default to the perfunctory, “I’m so sorry for your loss.” How did this happen? I’m sorry . . . for your loss? It does not even make sense. You don’t need to apologize for my loss. And “sorry” is a flimsy word, like trying to put out a fire with a Dixie cup. Just feels inadequate.

In the ebb and flow of the pandemic, we are in a both/and world—forced to learn a new way to be as we live. There is no new normal. Perhaps, a new tolerable—with the occasional glimmer of joy. I want to learn to carry the loss and the love together, the grief and the grace. Grief will always be a part of who I am down to the marrow—not just something that happened to me I have to get over. The tap dance of OK-ness is utterly exhausting. But the dark pit of despair is no place to exist, either.

So, I’m not going to list the ridiculous clichés. You’ve heard them. You may even say them. (No judgement.) But here are a few other great words worth sharing from the collection:

This totally sucks, but I’ve got you.”

“I want to know everything about Elliot—when you are ready.”

“You will get to a place where the sting of the pain softens a bit. Until then, I will be here for you every step of the way.”

“I love you. You are loved . . . always.”

“It’s OK to not be OK for as long as it takes. Allow yourself to feel and grieve at your own pace.”

“If you want to share your pain, I will catch what I can. I am here to sit or listen, and hold a space for you.”

“I can’t take your pain away, but I do have a shoulder to cry on and ears to listen.”

Megan Devine, another one of my grief gurus says, “Acknowledgement makes things better even when they cannot be made right. It’s a radical act to allow others pain and sit beside them with it.” In the end, grief is love.

Over the Rainbow: On the Edge of August

Maybe it’s the accumulation of almost sixty years of living in this body, but I am feeling the weight of my existence. No, my survival. I feel like I have been in survival mode—consciously or unconsciously for nearly half my life. That takes my breath away. Yet the past three years have eclipsed everything that came before. The loss of my son Elliot three years ago on August 5, 2018, at age 26 is the heaviest of all.

With August just days away, I have been drilling down into my search for a sense of renewed purpose in my life. With my son Ian in the interactive thick of his gaming master’s program at SMU, I have been peeling back the layers of my personal onion lately—asking myself all those daunting and stupefying questions:  How do I find meaning?  Why am I  here? What’s next?  How did I get here? Where do I belong? What should I do? All the usual cocktail party banter. Oh, how festive a good cocktail party used to be . . .

Writing helps. But it can be both an astringent and a salve—like pouring hydrogen peroxide on a wound to make it sizzle with pain, then soothing it with a healing ointment. This is an inescapable reality of living in the ubiquity of grief—a curse and a blessing, pain and gratitude, light and dark—all about finding a way to carry both with grace and aplomb. Ah, but there’s the rub. I seem to be fresh out of aplomb, but that might not be such a terrible thing. Stripping off the hardened layers of figurative varnish, liberally applied over the years to make everything look good on the outside, is probably healthy. Authenticity is definitely less work but more vulnerable. I have found that being present, grounded and real in the moment has its advantages.

Feeling bravely. Letting go. Saying no. Intentionally noticing where I am—to calm my unconsciously triggered nervous system. That’s the work. I can try to override an event intellectually, but my body keeps the score and always wins (referencing a seminal book on the subject by Bessel van der Kolk.) That’s pretty much how I roll now. Simple? Not always.

Process. Trust the  process. But trust the process?

As another August looms, it’s getting harder to breathe, especially since I am about to mark six decades on the planet on the 15th.  I also am remembering my late Aunt Virginia, who would have been 98 on August 6, and my mother, who died on August 22, 2012. Her birthday is August 27, and she would have been 86-ish. I’m a little vague on this, because my mom fudged her date of birth for so many years that she could never authoritatively confirm it. Regardless, August is heavy, and nine years later, my heart breaks for my mother—charming and magnanimous in public, but resentful and insecure in private. And tragically, her devastating stroke snatched her flamboyant life away far too soon—after leaving her paralyzed, brain-damaged and bedridden for nearly two years.

Thinking of Elliot and my mother on the edge of August, I am wondering about the journey of souls and the nature of life. Are Elliot, Mother, Father, Aunt Virginia, Cousin Scott, and my beloved mentor Ann Abbe together in some parallel cosmic dimension watching me try to function? Sometimes, I think so, but I’m not sure. When I interacted with my mother, aphasic after her stroke, she could say only “bah-bah-bah” with no discernible meaning attached. Yes, she was awake and present, but she was not there in a way I recognized. I suppose the mask of her larger-than-life self had dissolved. Being with her toward the end, I learned that souls have nothing to do with speech, thoughts or cognitive function. Her body was a mere vessel, still containing her spirit, but the violent rewiring of her brain’s circuits caused by the vicious stroke had amplified the serenity of her core essence somehow. It’s a strange thing to say, I know, but she seemed blissful, even giddy with childlike innocence. I was grateful for that part and wondered: Was this a glimpse of eternity?

When I was a little girl with my eyes open wide in the middle of the night under the covers, I tried desperately to visualize what heaven would be like. Would God be there? Would we frolic with angels amongst the clouds eating chocolate cake and picking flowers?  Would the streets be paved with gold and diamonds? What exactly was heaven, anyway?

I am still wondering about souls.

While the human being consists of physical matter, the soul is quite literally a piece of God, the Divine. The teachings of the Quran tell us the soul of each individual person is located in the eighth chakra at the top of the head, above the crown chakra. The power is not visible to human eyes, but it’s like the flow of electric current. And New Agers conjecture, “Your soul is your conscience, energy with no form or location that is part of the whole universe. The meaning of life is to evolve your conscience to higher consciousness—the source of all existence.”

Hard to pin down. Even harder to find.

Since Elliot died, I have never reached a point of feeling better— just different, and sometimes surprisingly so. His absence is always present. It never goes away, but maybe I’m learning to accept it—little by little, moment by moment. Not how it could have happened, but the reality that it did. I cherish the moments of forgiveness—for Elliot and for myself.  And then, a wave of grief hijacks me again. Alas, sustainable peace is just beyond my grasp right now, like the elusiveness of a distant rainbow I saw engulfing the morning sky yesterday. For a brief instant, I thought it might be Elliot—gorgeous in its subtle palette but ephemeral in its existence.

Then, I noticed something I never had—the bitter sweetness of a rainbow. Yes, there is beauty in its vivid hues, but it’s contained in a grand arch of sorrow enveloping the sky, the earth in mourning for my Elliot. I stopped in my tracks and wondered if I were the only one transfixed in this moment of poignant beauty. For so many, the rainbow is the ultimate symbol of hope and happiness, the stunning surprise belying the sadness of its form. But this is the way I meet every day and every moment of my life—such an apt metaphor for living with the untimely loss of my flesh and blood, my baby Elliot. The only solace it that he will always be in my heart—and alive in the hearts of so many who adored him.

.

Terms of Debridement: Living into Grief

“To weep is to make less the depth of grief.”
(Henry VI, Part III, Act II, Scene I, Line 85)

I have learned something important about grief from wound care.

Last summer, before my days shifted into darkness and just before everything I have ever been sure of in my world dissolved, I wrote an essay about the curious medical language of wound care.

In May and June of 2018, I accompanied my then 94-year-old aunt Virginia on her weekly visits to the Presbyterian Hospital Dallas wound clinic to treat the stubborn, angry wound she suffered from somehow hitting the outside of right ankle on her wheelchair. It simply refused to heal. The folks at Presbyterian Village North, her assisted living home, had run out of options.

At that time, little did I know that in a matter of weeks, my precious son Elliot would soar over the miserably inadequate barrier on the LBJ TEXpress entrance ramp – while riding his beloved motorcycle.

Little did I know that my brilliant firstborn son, a truly astonishing human, would take his last shallow breath in just over a month at that same hospital – where he also took his first breath 26 years prior. It’s all too much to process and handle for this bereaved mom. To tell you the truth, it takes every ounce of my depleted energy to barely function every day – still, over a year later. Don’t know how I ever breathe at all? Some days, it takes too much effort, and in some ways, it’s getting more difficult with each passing moment.

One of the reasons is this peculiar and uncomfortable statute of limitations on grief we perpetuate in American culture. Our “get over it, because it makes me uncomfortable” vibe is like living every day with a sheet of Saran wrap on your face. And no one seems to notice you can’t breathe.

I know it’s unpleasant.

I know people mean well. But death sucks. It’s unavoidable. I know they don’t know what to say, but we all need to figure it out – and do a better job seeing each other and caring for each other emotionally. It’s not weakness. We need to stop ranting at each other about all the “big, bad -isms” – and start paying attention to ourselves as individuals with open hearts and tender souls. Being present for each other is what matters – life and death matters. The loss of a child is an emotional wound beyond measure – one you will never get over. You must learn a new way to live. My soul sister Patty says, “If the loss of child were a physical wound, we’d be in the ER.” I’m not saying we all need psychology degrees. It’s about intentional acknowledgement – recognizing the profound wounds of loss – physical and emotional – early and often.

The fact is that we need to talk about the loss to move ahead. I treasure the friends most who say Elliot’s name and ask me to talk about him. His friends Chase, Brian and Alec – they are angels on earth. Overwhelming loss is the deepest, the most insidious kind of wound.

Grief needs air to heal.

We can’t just let it scab over and ignore the tissues below. And, like my aunt’s deep, festering physical wound, an emotional wound often needs debridement. That’s one of the wound words that truly resonates. You may think talking about Elliot will upset me, but that’s exacting what I need. It triggers the pain, but the tears are a tonic. The pain never goes away, anyway. Not ever. And, pain plays a role – signaling that something is horribly wrong, rallying the body’s resources – calling in the Navy Seals of the heart!

Technically, debridement is the term for the medical procedure that deliberately aggravates the wound in order to help it heal. With grief, we must do that – revisit the pain that makes us physically wince. It’s a necessary cringe, but we must not linger there. Telling and retelling our stories – that is our task. Finding situations and people who will listen, allow and support us unconditionally is essential – people who give us the space to remember the losses in our past and foreshadow what they mean for our futures. These people are rare and cherished. Without their divine grace, we will never emerge from this murky miasma (one of Elliot’s favorite words).

With debridement, we remove the unhealthy tissue and promote the healing – exposing a new day. The body is designed to heal, but the muck is heavy. The wound can become senescent or old when the cells are still alive and metabolically active but not able to divide and thrive. They are merely surviving, not thriving . . . senescent.

We can’t let that state persist – with unattended wounds scabbing over, harboring our deepest traumas.